TeamPWCF represented the PWS community well at the Long Beach Marathon over the weekend of October 13th – 15th. It started with Team captain, Julie Casey, along with her husband Dan and son Ryan, setting up the information booth at the expo on Friday morning. Julie worked the booth all day with some help from Dan,
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Thank you to the following sponsors for supporting the 2022 Walking for PWS events. With their support we are one step closer to a Full Life Without Limits for people with Prader-Willi syndrome. Please take a moment to visit their websites to get informed with their mission and their upcoming projects. Soleno Therapeutics: soleno.life Harmony Biosciences:
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Join us for a special PWS nutrition training series presented by Leah Blalock, MS, RD, CSP, CDE. Each training will have a different focus and will be presented live on Zoom. Dates and further details on each session below. Each session will take place from 10:00 AM - 11:00 AM PST. May 15, 2021 - Nutrition
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We would like to share an update for students with disabilities returning to in-person classes. The following excerpt is from the California Department of Education. "The California Department of Education (CDE) is committed to supporting schools, families, and communities during the COVID–19 pandemic and this unprecedented time in education. Recently, the California Department of Education has
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Register Here Join us for a brand new behavior management training series presented by Lisa Graziano, M.A., LMFT. This 7 part series will explore the different aspects of PWS behaviors and introduce various techniques you can implement to manage these behaviors. If you are unable to tune in live, no worries. Registration includes a downloadable recording
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The Include Everyone Project of Santa Clarita Valley (IEPSCV) is providing monthly music and movement sessions for PWCF members beginning on Saturday morning, February 27th. If you wish to receive emails containing links to this or any of our other activities, please opt into our Weekly Activities Mailing list.Participants are required to sign this waiver prior to
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Join Brad Clark of BC Adaptive Fitness and PWCF for "Fun & Fitness" from 4 - 4:45 PM PST on Thursdays! No charge for current PWCF members. Ages 14 and older are welcome. The next 12 week session begins on May 27 and ends August 12.Participants can track their progress by earning virtual badges to share with
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Renew your membership today for access to a growing community of families and professionals working together to achieve a full life without limits for people with PWS. Click here to renew your membership. Your membership includes exciting resources and new services in 2021 such as: Online Chat Groups for People with PWS - No ChargeAdaptive Fitness
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Dear PWCF Member, We understand you have many questions about the Covid-19 vaccine. Below are some resources we hope you find helpful as you navigate the current situation. While we cannot offer medical advice, please know that PWCF is here to support you as you decide what is best for your family. The Prader-Willi Syndrome Association
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PWSA | USA has released an article on their site regarding the newest COVID-19 vaccines and their importance to people with PWS. "The types of vaccines now available against COVID-19 use mRNA technology. This type of vaccine has been under development for many years and, unlike other immunizations, does not place a weak or inactive germ into the
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