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So far Luis has created 88 blog entries.

A PWS Athlete’s Story

2024-06-04T09:28:03-08:00June 4th, 2024|

The PWCF Walks are now behind us, and from what I have heard they were once again amazing.  This year, however, for first time in our family’s history we were not able to attend our Walk (the Southern California Walk).  We have always been passionately fond of the Walks, and have each of us the full

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A Chance Encounter

2024-06-04T11:10:37-08:00June 4th, 2024|

“Nobody is promised tomorrow, stay strong and savor the moment.” – Nichole Broussard  Prader-Willi syndrome appears in about every 1 out of 15,000 live births. It is the rare genetic syndrome that brings the PWCF community together every May to celebrate PWS Awareness month. The PWCF organization is made up of 2000+ families spread out throughout

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Thank you to the 2024 Walking for PWS Sponsors!

2024-04-05T13:31:15-08:00April 5th, 2024|

We appreciate all of the sponsors who are supporting the Walking for PWS events this year. Please click the links below to learn more about each of the sponsors.   Harmony Biosciences - www.harmonybiosciences.com Soleno Therapeutics - www.soleno.life Acadia Therapeutics - www.acadia.com Aardvark Therapeutics - www.aardvarktherapeutics.com

Walking for PWS 2024

2024-03-18T14:31:29-08:00March 18th, 2024|

Register for the San Francisco Walk  Register for the Fullerton Walk Register for the San Diego Walk Ready, Set, GLOW! The 24th annual Walking for PWS events are here! This year, we are going to GLOW. Find your favorite neon accessories, throw on a new Walking for PWS exclusive tee and show the world how we

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Shining Star High Score Leaderboard

2023-12-08T13:43:58-08:00November 20th, 2023|

Take a look at the many names on our High Score Leaderboard! Thank you to all of the individuals who have donated to our holiday campaign. *Score is not actually being kept. Every donation is awarded a placement on the board. ]

TeamPWCF Rocks the Marathon

2023-10-31T12:31:07-08:00October 31st, 2023|

TeamPWCF represented the PWS community well at the Long Beach Marathon over the weekend of October 13th – 15th. It started with Team captain, Julie Casey, along with her husband Dan and son Ryan, setting up the information booth at the expo on Friday morning. Julie worked the booth all day with some help from Dan,

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Back to School Video for Members

2024-04-10T13:45:50-08:00September 19th, 2023|

Prepare yourself for the rest of the school year with an exclusive members-only presentation by Lisa Graziano, M.A., LMFT. PWCF is here to support and empower you as you parent your child during the school-age years. Below is a Quick Guide to learning more about areas of particular interest for parenting the school-age child.   Back

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Thank You 2023 General Education Meeting Sponsors

2023-09-18T11:28:31-08:00September 18th, 2023|

The Prader-Willi California Foundation would like to thank the generous sponsors who are supporting this year's General Education Meeting. Please visit each of their websites to learn more about their mission and impact on the Prader-Willi Syndrome. Thank you to the following sponsors: Bronze Sponsor: Aardvark Therapeutics - www.aardvarktherapeutics.com Acadia Pharmaceuticals - www.acadia.com Silver Sponsor: Soleno Therapeutics

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The Story of Theresa Sharpan

2023-07-03T10:32:59-08:00June 14th, 2023|

Families often find themselves wondering what life could possibly look like for their loved one with Prader-Willi syndrome (PWS). There is usually little clarity upon having a new diagnosis and sometimes that can be intimidating for new families. Now imagine having a newborn with PWS in an era before PWS even had a name!                 Ann

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Walking for PWS 2023

2023-02-13T10:24:32-08:00January 26th, 2023|

PWCF is going on tour! Kind of. We're excited to see you all again this year in-person for our 2023 Walking for PWS events. We will be making our way up the state of California between April 30 and May 20 stopping at three major cities to bring the fun of our Walks to our PWCF

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