About Luis

This author has not yet filled in any details.
So far Luis has created 86 blog entries.

Thank you to the 2024 Walking for PWS Sponsors!

2024-04-05T13:31:15-08:00April 5th, 2024|

We appreciate all of the sponsors who are supporting the Walking for PWS events this year. Please click the links below to learn more about each of the sponsors.   Harmony Biosciences - www.harmonybiosciences.com Soleno Therapeutics - www.soleno.life Acadia Therapeutics - www.acadia.com Aardvark Therapeutics - www.aardvarktherapeutics.com

Walking for PWS 2024

2024-03-18T14:31:29-08:00March 18th, 2024|

Register for the San Francisco Walk  Register for the Fullerton Walk Register for the San Diego Walk Ready, Set, GLOW! The 24th annual Walking for PWS events are here! This year, we are going to GLOW. Find your favorite neon accessories, throw on a new Walking for PWS exclusive tee and show the world how we

More >

Shining Star High Score Leaderboard

2023-12-08T13:43:58-08:00November 20th, 2023|

Take a look at the many names on our High Score Leaderboard! Thank you to all of the individuals who have donated to our holiday campaign. *Score is not actually being kept. Every donation is awarded a placement on the board. ]

TeamPWCF Rocks the Marathon

2023-10-31T12:31:07-08:00October 31st, 2023|

TeamPWCF represented the PWS community well at the Long Beach Marathon over the weekend of October 13th – 15th. It started with Team captain, Julie Casey, along with her husband Dan and son Ryan, setting up the information booth at the expo on Friday morning. Julie worked the booth all day with some help from Dan,

More >

Back to School Video for Members

2024-04-10T13:45:50-08:00September 19th, 2023|

Prepare yourself for the rest of the school year with an exclusive members-only presentation by Lisa Graziano, M.A., LMFT. PWCF is here to support and empower you as you parent your child during the school-age years. Below is a Quick Guide to learning more about areas of particular interest for parenting the school-age child.   Back

More >

Thank You 2023 General Education Meeting Sponsors

2023-09-18T11:28:31-08:00September 18th, 2023|

The Prader-Willi California Foundation would like to thank the generous sponsors who are supporting this year's General Education Meeting. Please visit each of their websites to learn more about their mission and impact on the Prader-Willi Syndrome. Thank you to the following sponsors: Bronze Sponsor: Aardvark Therapeutics - www.aardvarktherapeutics.com Acadia Pharmaceuticals - www.acadia.com Silver Sponsor: Soleno Therapeutics

More >

The Story of Theresa Sharpan

2023-07-03T10:32:59-08:00June 14th, 2023|

Families often find themselves wondering what life could possibly look like for their loved one with Prader-Willi syndrome (PWS). There is usually little clarity upon having a new diagnosis and sometimes that can be intimidating for new families. Now imagine having a newborn with PWS in an era before PWS even had a name!                 Ann

More >

Walking for PWS 2023

2023-02-13T10:24:32-08:00January 26th, 2023|

PWCF is going on tour! Kind of. We're excited to see you all again this year in-person for our 2023 Walking for PWS events. We will be making our way up the state of California between April 30 and May 20 stopping at three major cities to bring the fun of our Walks to our PWCF

More >

KITE-PWS is Seeking Participants for PWS Research Study

2022-11-30T09:43:29-08:00November 30th, 2022|

KITE-PWS is currently recruiting for their clinical trial that is seeking people aged 17 years and older with excessive hunger caused by PWS to participate. The experimental study drug, called RGH-706, helps to block melanin- concentrating hormone (MCH), which is thought to play a key part in the brain’s food seeking mechanism. The study lasts 5-6

More >

2022 Long Beach Marathon Event Recap

2022-11-02T09:11:04-08:00November 2nd, 2022|

After three years, TeamPWCF returned as an official charity at the Long Beach Marathon/Aquarium of the Pacific 5K. It was a beautiful race weekend filled with raising awareness.  Representing eleven loved ones who have Prader-Willi syndrome, TeamPWCF had thirty-three people participate in all four races. Thirty-one people, (including seven individuals with PWS), did the 5K; four

More >


Go to Top