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So far Luis has created 7 blog entries.

Thank you to the 2022 Walking for PWS Sponsors!

2022-03-14T14:12:02-08:00March 14th, 2022|

Thank you to the following sponsors for supporting the 2022 Walking for PWS events. With their support we are one step closer to a Full Life Without Limits for people with Prader-Willi syndrome. Please take a moment to visit their websites to get informed with their mission and their upcoming projects. Soleno Therapeutics: soleno.life Harmony Biosciences:

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Walking for PWS 2022: In-Person Walks are Back!

2022-03-09T09:56:52-08:00February 1st, 2022|

Register for a Walk Below: Sunday, April 24 - Southern California (Fullerton): Ted Craig Regional Park Saturday, April 30 - San Diego (Chula Vista): Rohr Park Saturday, May 14 - Northern California (San Francisco): Little Marina Green, Crissy Field   We are excited to announce that our annual Walk for PWS events are returning to an

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February 28 is Rare Disease Day!

2022-01-31T15:31:41-08:00January 31st, 2022|

Help us raise awareness for Prader-Willi syndrome by getting involved with one, or all, of these ways: Buy an Awareness Shirt In honor of this year’s theme “Show Your Colors”, we’ve created a shirt that you can wear not only on Rare Disease Day, but all year long. In keeping with the theme, this fun colorful

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Create a Valentine’s Day eCard for your loved one

2022-01-31T14:16:51-08:00January 31st, 2022|

Spread the love during the month of February and send a custom eCard to your loved one. Create a card here. Customize the cards to your liking! Include a personal message and a photo of your loved one or family to create a special card for your loved ones. There is no limit to the amount

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Welcome the 2022 PWCF Board of Directors

2022-01-25T15:21:56-08:00January 25th, 2022|

PWCF would like to introduce the new 2022 Board of Directors roster. Please join us in giving a warm welcome to the following individuals. Jennifer Paige - President  Melissa Estrada - Vice President Molly Fuller - Secretary Petra Martinez-Ali - Assistant Secretary Nisha Mehta June Anne Gold, M.D. Jennifer Meade Rodney Dong Daniela Rubin, PhD Lisa

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Virtual PWCF Activities in 2022

2022-01-19T15:25:08-08:00January 19th, 2022|

As we look ahead into the year, we are excited to share that we will continue our various online activities for members to enjoy. These activities will be conducted over Zoom. The links will be shared with those that are apart of our activities mailing list. Please contact us at info@pwcf.org for further information on how

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Shine a light on your loved one today!

2022-01-19T14:17:41-08:00November 11th, 2021|

Shining Star is the yearly opportunity for the PWS community to reflect back love and support! With your support we were able to raise a grand total of $27,348. Take a look at a few fast facts about the Shining Star campaign: - We raised a grand total of $27,348 for Prader-Willi Syndrome resources and services. -

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