About Luis

This author has not yet filled in any details.
So far Luis has created 82 blog entries.

Back to School Video for Members

2023-09-19T10:14:31-08:00September 19th, 2023|

Prepare yourself for the rest of the school year with an exclusive members-only presentation by Lisa Graziano, M.A., LMFT. PWCF is here to support and empower you as you parent your child during the school-age years. Below is a Quick Guide to learning more about areas of particular interest for parenting the school-age child.   Back

More >

Thank You 2023 General Education Meeting Sponsors

2023-09-18T11:28:31-08:00September 18th, 2023|

The Prader-Willi California Foundation would like to thank the generous sponsors who are supporting this year's General Education Meeting. Please visit each of their websites to learn more about their mission and impact on the Prader-Willi Syndrome. Thank you to the following sponsors: Bronze Sponsor: Aardvark Therapeutics - www.aardvarktherapeutics.com Acadia Pharmaceuticals - www.acadia.com Silver Sponsor: Soleno Therapeutics

More >

The Story of Theresa Sharpan

2023-07-03T10:32:59-08:00June 14th, 2023|

Families often find themselves wondering what life could possibly look like for their loved one with Prader-Willi syndrome (PWS). There is usually little clarity upon having a new diagnosis and sometimes that can be intimidating for new families. Now imagine having a newborn with PWS in an era before PWS even had a name!                 Ann

More >

Walking for PWS 2023

2023-02-13T10:24:32-08:00January 26th, 2023|

PWCF is going on tour! Kind of. We're excited to see you all again this year in-person for our 2023 Walking for PWS events. We will be making our way up the state of California between April 30 and May 20 stopping at three major cities to bring the fun of our Walks to our PWCF

More >

KITE-PWS is Seeking Participants for PWS Research Study

2022-11-30T09:43:29-08:00November 30th, 2022|

KITE-PWS is currently recruiting for their clinical trial that is seeking people aged 17 years and older with excessive hunger caused by PWS to participate. The experimental study drug, called RGH-706, helps to block melanin- concentrating hormone (MCH), which is thought to play a key part in the brain’s food seeking mechanism. The study lasts 5-6

More >

2022 Long Beach Marathon Event Recap

2022-11-02T09:11:04-08:00November 2nd, 2022|

After three years, TeamPWCF returned as an official charity at the Long Beach Marathon/Aquarium of the Pacific 5K. It was a beautiful race weekend filled with raising awareness.  Representing eleven loved ones who have Prader-Willi syndrome, TeamPWCF had thirty-three people participate in all four races. Thirty-one people, (including seven individuals with PWS), did the 5K; four

More >

Meet the Speakers for the 2022 General Education Meeting

2022-07-14T13:54:49-08:00July 13th, 2022|

PWCF is proud to announce the 3 incredibly insightful and highly respected speakers for the 2022 General Education Meeting. Their range in topics and expertise in their fields have provided positive change in the PWS community. We are honored to have Dr. Kate Woodcock, Dr. Suparna Jain and Dr. Diane Stafford as speakers for our conference.

More >

Join us at the 2022 PWCF General Education Meeting

2022-08-10T07:47:15-08:00June 21st, 2022|

Knowledge IS Power. Strengthen your perspective on Prader-Willi Syndrome at the GEM. Date: Saturday, October 15 at the Sonesta LAX Airport Hotel Time: 8 AM - 5 PM. Schedule and speakers to be released soon. *Early Bird Special: Receive admission to the conference for $20 off until September 1. The conference includes the full conference and lunch. Time: 8 AM -

More >

Thank you to the 2022 Walking for PWS Sponsors!

2022-03-14T14:12:02-08:00March 14th, 2022|

Thank you to the following sponsors for supporting the 2022 Walking for PWS events. With their support we are one step closer to a Full Life Without Limits for people with Prader-Willi syndrome. Please take a moment to visit their websites to get informed with their mission and their upcoming projects. Soleno Therapeutics: soleno.life Harmony Biosciences:

More >

February 28 is Rare Disease Day!

2022-01-31T15:31:41-08:00January 31st, 2022|

Help us raise awareness for Prader-Willi syndrome by getting involved with one, or all, of these ways: Buy an Awareness Shirt In honor of this year’s theme “Show Your Colors”, we’ve created a shirt that you can wear not only on Rare Disease Day, but all year long. In keeping with the theme, this fun colorful

More >


Go to Top