News Welcome to the new PWCF website. Check out our new and improved resources area.
Newly diagnosed?
Receive clear guidance, practical resources, and compassionate support to help you understand Prader-Willi syndrome and confidently take your next steps.
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Personalized support is just a click away and PWCF is here to help. Call or email us.
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Our Mission
PWCF provides individuals with PWS, their families, and professionals with a network of education, advocacy, and support services throughout California.
1979
Founded
850
Active Members
Education
Support
Advocacy
Awareness
Research
What is Prader-Willi syndrome?
A concise overview of this rare complex genetic disorder, with foundational information for people who are just beginning to learn about PWS.
Latest News
Recapping the Soleno Community Day in Los Angeles
Soleno’s Community Day took place in Los Angeles on Saturday, July 25. I attended the event in hopes to see some of our incredible PWCF […]
Welcome to the New Website!
Dear PWCF Families, Welcome to the brand new website! We are incredibly excited to introduce you to our user-friendly home for all things PWCF. A […]
Walking for PWS 2025
Celebrate 25 years of the Walking for PWS events at a city near you! This event series happens once a year during National PWS Awareness […]
Upcoming Events
Featured event
Connected for Life: Supporting Every Age and Every Stage
Date: October 24, 2026
Time: 8 AM - 5 PM.
Schedule to be released soon.
Speakers:
Dr. Jessica Duis - Prader-Willi Syndrome Through Adolescence and Adulthood: Management with a Focus on Psychiatry
Lisa Graziano, M.A., LMFT - How to Thrive Through the Holidays
Dr. Daniela Rubin - Exercising with Prader-Willi Syndrome: Motor Barriers and How to Overcome Them
Jeffrey Nickerson, Esq. - What You Need to Know Before Your Child Turns 18
*Early Bird Special: Receive admission to the conference for $25 off until August 31st.
The conference includes the full conference and lunch.
Youth and Adult Program:
All ages are welcome at the Youth and Adult Program! Fun activities will keep your loved one entertained while you attend the conference. Healthy snacks and lunch will be provided. If your child or adult cannot eat the food provided and you would like to bring your own food, you must accompany your child or adult outside of the YAP rooms. Further information will be released upon registration.
Limited spaces available.
Refreshments:
Sit down lunch is provided in the afternoon and coffee/tea will be served throughout the day.
Please contact PWCF at least 5 days prior to the conference if you would prefer a vegetarian lunch option.
Become a Member
PWCF serves family and professional members throughout California, offering programs and services across our five program areas: education, support, advocacy, awareness, and research.
