A full life
without limits.
The success of people with Prader-Willi syndrome depends greatly upon the knowledge and support of the community around them.
Prader-Willi California Foundation is committed to being an integral part of your support community.
Our Mission
Individuals with Prader-Willi syndrome should have the opportunity to pursue their hopes and dreams to the full extent of their talents and capabilities. The success of people with Prader-Willi syndrome depends greatly upon the knowledge and support of the community around them. The Prader-Willi California Foundation provides individuals with PWS, their families and professionals with a state network of information, advocacy and support services.
Our Vision
A full life without limits.
Events
How we help
Prader-Willi California Foundation provides the following comprehensive range of services:
How we help
Prader-Willi California Foundation provides the following comprehensive range of services:
Programs benefit children, parents, physicians, health care professionals, teachers, Regional Center personnel, and vocational and residential service providers.
Children with PWS and their siblings, parents, and community members gain valuable knowledge and support.
Financial assistance helps children attend an exclusive PWS camp (the only one in California) at a specialized, medically monitored mountain facility.
In-service trainings help those contributing to a child’s IEP (Individual Educational Plan) access important PWS information, production of a DVD titled Understanding the Student with Prader-Willi Syndrome, Strategies for Success, which is distributed locally, nationally, and internationally. Without these informative materials, children with PWS are simply not able to secure the appropriate medical, therapeutic, and educational services they need.
PWCF funds healthcare specialists within clinic and hospital settings who provide state-of-the-art treatment to children with PWS.
Teaching provides individualized training, technical assistance, and workshops to improve the lives of children and adults with PWS.
Group meetings, on-line support services, parent mentors, and 24 hour a day crisis phone lines are provided.
1:1 assistance helps families obtain Regional Center services and various medical, therapeutic, educational, and vocational services necessary to improve the health and welfare of a child with PWS.
Community education is provided through PWCF’s website, quarterly newsletters, public service announcements, press releases, radio interviews, awareness booths and Jumbotron messaging at sporting events, and walk-a-thon/picnics. PWCF writes and produces brochures, articles, and educational DVDs.
Interest free loans and grants are provided to residential facilities and vocational work sites that support persons with PWS. Exercise equipment and furniture grants have been given to group homes serving those with PWS. Production of a Residential Services Staff Training DVD and study guide to assist residential facilities and families.
PWCF supports state and national research by working with local universities, teaching hospitals, researchers, and scientists to help recruit research subjects and disseminate research materials to families.
How we help
Prader-Willi California Foundation provides the following comprehensive range of services:
Programs benefit children, parents, physicians, health care professionals, teachers, Regional Center personnel, and vocational and residential service providers.
Children with PWS and their siblings, parents, and community members gain valuable knowledge and support.
Financial assistance helps children attend an exclusive PWS camp (the only one in California) at a specialized, medically monitored mountain facility.
In-service trainings help those contributing to a child’s IEP (Individual Educational Plan) access important PWS information, production of a DVD titled Understanding the Student with Prader-Willi Syndrome, Strategies for Success, which is distributed locally, nationally, and internationally. Without these informative materials, children with PWS are simply not able to secure the appropriate medical, therapeutic, and educational services they need.
PWCF funds healthcare specialists within clinic and hospital settings who provide state-of-the-art treatment to children with PWS.
Teaching provides individualized training, technical assistance, and workshops to improve the lives of children and adults with PWS.
Group meetings, on-line support services, parent mentors, and 24 hour a day crisis phone lines are provided.
1:1 assistance helps families obtain Regional Center services and various medical, therapeutic, educational, and vocational services necessary to improve the health and welfare of a child with PWS.
Community education is provided through PWCF’s website, quarterly newsletters, public service announcements, press releases, radio interviews, awareness booths and Jumbotron messaging at sporting events, and walk-a-thon/picnics. PWCF writes and produces brochures, articles, and educational DVDs.
Interest free loans and grants are provided to residential facilities and vocational work sites that support persons with PWS. Exercise equipment and furniture grants have been given to group homes serving those with PWS. Production of a Residential Services Staff Training DVD and study guide to assist residential facilities and families.
PWCF supports state and national research by working with local universities, teaching hospitals, researchers, and scientists to help recruit research subjects and disseminate research materials to families.
News
Shine a light on your loved one today!
Shining Star is the yearly opportunity for the PWS community to reflect back love and support! Contribute to the star map below and dedicate a star to your loved one by clicking
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PWS Nutrition Workshop Series – No Cost for Members!
Join us for a special PWS nutrition training series presented by Leah Blalock, MS, RD, CSP, CDE. Each training will have a different focus and will be presented live on Zoom. Dates
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Masks Not Mandatory for Students with Disabilities
We would like to share an update for students with disabilities returning to in-person classes. The following excerpt is from the California Department of Education. "The California Department of Education (CDE) is
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