Back to School Video for Members

2024-04-10T13:45:50-08:00September 19th, 2023|

Prepare yourself for the rest of the school year with an exclusive members-only presentation by Lisa Graziano, M.A., LMFT. PWCF is here to support and empower you as you parent your child during the school-age years. Below is a Quick Guide to learning more about areas of particular interest for parenting the school-age child.   Back

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Join us at the 2022 PWCF General Education Meeting

2022-08-10T07:47:15-08:00June 21st, 2022|

Knowledge IS Power. Strengthen your perspective on Prader-Willi Syndrome at the GEM. Date: Saturday, October 15 at the Sonesta LAX Airport Hotel Time: 8 AM - 5 PM. Schedule and speakers to be released soon. *Early Bird Special: Receive admission to the conference for $20 off until September 1. The conference includes the full conference and lunch. Time: 8 AM -

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PWS Nutrition Workshop Series – No Cost for Members!

2022-08-30T15:37:43-08:00April 15th, 2021|

Join us for a special PWS nutrition training series presented by Leah Blalock, MS, RD, CSP, CDE. Each training will have a different focus and will be presented live on Zoom. Dates and further details on each session below. Each session will take place from 10:00 AM - 11:00 AM PST. May 15, 2021 - Nutrition

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Masks Not Mandatory for Students with Disabilities

2022-08-30T15:37:49-08:00March 16th, 2021|

We would like to share an update for students with disabilities returning to in-person classes. The following excerpt is from the California Department of Education. "The California Department of Education (CDE) is committed to supporting schools, families, and communities during the COVID–19 pandemic and this unprecedented time in education. Recently, the California Department of Education has

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Diving Deep Into Managing PWS Behaviors

2022-08-30T15:37:58-08:00March 9th, 2021|

Register Here Join us for a brand new behavior management training series presented by Lisa Graziano, M.A., LMFT. This 7 part series will explore the different aspects of PWS behaviors and introduce various techniques you can implement to manage these behaviors. If you are unable to tune in live, no worries. Registration includes a downloadable recording

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Music and Movement Monthly Sessions with IEPSCV

2022-08-30T15:37:53-08:00February 4th, 2021|

The Include Everyone Project of Santa Clarita Valley (IEPSCV) is providing monthly music and movement sessions for PWCF members beginning on Saturday morning, February 27th. If you wish to receive emails containing links to this or any of our other activities, please opt into our Weekly Activities Mailing list.Participants are required to sign this waiver prior to

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Weekly Adaptive Fitness Classes with Brad Clark

2022-08-30T15:38:06-08:00February 3rd, 2021|

Join Brad Clark of BC Adaptive Fitness and PWCF for "Fun & Fitness" from 4 - 4:45 PM PST on Thursdays! No charge for current PWCF members. Ages 14 and older are welcome. The next 12 week session begins on May 27 and ends August 12.Participants can track their progress by earning virtual badges to share with

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Renew Your 2021 Membership Today

2022-08-30T15:38:17-08:00February 2nd, 2021|

Renew your membership today for access to a growing community of families and professionals working together to achieve a full life without limits for people with PWS. Click here to renew your membership. Your membership includes exciting resources and new services in 2021 such as: Online Chat Groups for People with PWS - No ChargeAdaptive Fitness

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COVID-19 Vaccination Updates

2022-08-30T15:38:12-08:00January 19th, 2021|

Dear PWCF Member, We understand you have many questions about the Covid-19 vaccine. Below are some resources we hope you find helpful as you navigate the current situation. While we cannot offer medical advice, please know that PWCF is here to support you as you decide what is best for your family.  The Prader-Willi Syndrome Association

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PWSA | USA’s Statement Regarding People with PWS and COVID-19 Immunization

2022-08-30T15:38:22-08:00January 4th, 2021|

PWSA | USA has released an article on their site regarding the newest COVID-19 vaccines and their importance to people with PWS. "The types of vaccines now available against COVID-19 use mRNA technology.  This type of vaccine has been under development for many years and, unlike other immunizations, does not place a weak or inactive germ into the

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