2022 Long Beach Marathon Event Recap

2022-11-02T09:11:04-08:00November 2nd, 2022|

After three years, TeamPWCF returned as an official charity at the Long Beach Marathon/Aquarium of the Pacific 5K. It was a beautiful race weekend filled with raising awareness.  Representing eleven loved ones who have Prader-Willi syndrome, TeamPWCF had thirty-three people participate in all four races. Thirty-one people, (including seven individuals with PWS), did the 5K; four

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Meet the Speakers for the 2022 General Education Meeting

2022-07-14T13:54:49-08:00July 13th, 2022|

PWCF is proud to announce the 3 incredibly insightful and highly respected speakers for the 2022 General Education Meeting. Their range in topics and expertise in their fields have provided positive change in the PWS community. We are honored to have Dr. Kate Woodcock, Dr. Suparna Jain and Dr. Diane Stafford as speakers for our conference.

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Thank you to the 2022 Walking for PWS Sponsors!

2022-03-14T14:12:02-08:00March 14th, 2022|

Thank you to the following sponsors for supporting the 2022 Walking for PWS events. With their support we are one step closer to a Full Life Without Limits for people with Prader-Willi syndrome. Please take a moment to visit their websites to get informed with their mission and their upcoming projects. Soleno Therapeutics: soleno.life Harmony Biosciences:

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February 28 is Rare Disease Day!

2022-01-31T15:31:41-08:00January 31st, 2022|

Help us raise awareness for Prader-Willi syndrome by getting involved with one, or all, of these ways: Buy an Awareness Shirt In honor of this year’s theme “Show Your Colors”, we’ve created a shirt that you can wear not only on Rare Disease Day, but all year long. In keeping with the theme, this fun colorful

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Create a Valentine’s Day eCard for your loved one

2022-01-31T14:16:51-08:00January 31st, 2022|

Spread the love during the month of February and send a custom eCard to your loved one. Create a card here. Customize the cards to your liking! Include a personal message and a photo of your loved one or family to create a special card for your loved ones. There is no limit to the amount

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Welcome the 2022 PWCF Board of Directors

2022-01-25T15:21:56-08:00January 25th, 2022|

PWCF would like to introduce the new 2022 Board of Directors roster. Please join us in giving a warm welcome to the following individuals. Jennifer Paige - President  Melissa Estrada - Vice President Molly Fuller - Secretary Petra Martinez-Ali - Assistant Secretary Nisha Mehta June Anne Gold, M.D. Jennifer Meade Rodney Dong Daniela Rubin, PhD Lisa

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Virtual PWCF Activities in 2022

2022-01-19T15:25:08-08:00January 19th, 2022|

As we look ahead into the year, we are excited to share that we will continue our various online activities for members to enjoy. These activities will be conducted over Zoom. The links will be shared with those that are apart of our activities mailing list. Please contact us at info@pwcf.org for further information on how

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PWS Nutrition Workshop Series – No Cost for Members!

2022-08-30T15:37:43-08:00April 15th, 2021|

Join us for a special PWS nutrition training series presented by Leah Blalock, MS, RD, CSP, CDE. Each training will have a different focus and will be presented live on Zoom. Dates and further details on each session below. Each session will take place from 10:00 AM - 11:00 AM PST. May 15, 2021 - Nutrition

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Masks Not Mandatory for Students with Disabilities

2022-08-30T15:37:49-08:00March 16th, 2021|

We would like to share an update for students with disabilities returning to in-person classes. The following excerpt is from the California Department of Education. "The California Department of Education (CDE) is committed to supporting schools, families, and communities during the COVID–19 pandemic and this unprecedented time in education. Recently, the California Department of Education has

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Diving Deep Into Managing PWS Behaviors

2022-08-30T15:37:58-08:00March 9th, 2021|

Register Here Join us for a brand new behavior management training series presented by Lisa Graziano, M.A., LMFT. This 7 part series will explore the different aspects of PWS behaviors and introduce various techniques you can implement to manage these behaviors. If you are unable to tune in live, no worries. Registration includes a downloadable recording

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