PWS Nutrition Workshop Series – No Cost for Members!

2022-08-30T15:37:43-08:00April 15th, 2021|

Join us for a special PWS nutrition training series presented by Leah Blalock, MS, RD, CSP, CDE. Each training will have a different focus and will be presented live on Zoom. Dates and further details on each session below. Each session will take place from 10:00 AM - 11:00 AM PST. May 15, 2021 - Nutrition

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Masks Not Mandatory for Students with Disabilities

2022-08-30T15:37:49-08:00March 16th, 2021|

We would like to share an update for students with disabilities returning to in-person classes. The following excerpt is from the California Department of Education. "The California Department of Education (CDE) is committed to supporting schools, families, and communities during the COVID–19 pandemic and this unprecedented time in education. Recently, the California Department of Education has

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Diving Deep Into Managing PWS Behaviors

2022-08-30T15:37:58-08:00March 9th, 2021|

Register Here Join us for a brand new behavior management training series presented by Lisa Graziano, M.A., LMFT. This 7 part series will explore the different aspects of PWS behaviors and introduce various techniques you can implement to manage these behaviors. If you are unable to tune in live, no worries. Registration includes a downloadable recording

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Music and Movement Monthly Sessions with IEPSCV

2022-08-30T15:37:53-08:00February 4th, 2021|

The Include Everyone Project of Santa Clarita Valley (IEPSCV) is providing monthly music and movement sessions for PWCF members beginning on Saturday morning, February 27th. If you wish to receive emails containing links to this or any of our other activities, please opt into our Weekly Activities Mailing list.Participants are required to sign this waiver prior to

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Weekly Adaptive Fitness Classes with Brad Clark

2022-08-30T15:38:06-08:00February 3rd, 2021|

Join Brad Clark of BC Adaptive Fitness and PWCF for "Fun & Fitness" from 4 - 4:45 PM PST on Thursdays! No charge for current PWCF members. Ages 14 and older are welcome. The next 12 week session begins on May 27 and ends August 12.Participants can track their progress by earning virtual badges to share with

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Renew Your 2021 Membership Today

2022-08-30T15:38:17-08:00February 2nd, 2021|

Renew your membership today for access to a growing community of families and professionals working together to achieve a full life without limits for people with PWS. Click here to renew your membership. Your membership includes exciting resources and new services in 2021 such as: Online Chat Groups for People with PWS - No ChargeAdaptive Fitness

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COVID-19 Vaccination Updates

2022-08-30T15:38:12-08:00January 19th, 2021|

Dear PWCF Member, We understand you have many questions about the Covid-19 vaccine. Below are some resources we hope you find helpful as you navigate the current situation. While we cannot offer medical advice, please know that PWCF is here to support you as you decide what is best for your family.  The Prader-Willi Syndrome Association

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PWSA | USA’s Statement Regarding People with PWS and COVID-19 Immunization

2022-08-30T15:38:22-08:00January 4th, 2021|

PWSA | USA has released an article on their site regarding the newest COVID-19 vaccines and their importance to people with PWS. "The types of vaccines now available against COVID-19 use mRNA technology.  This type of vaccine has been under development for many years and, unlike other immunizations, does not place a weak or inactive germ into the

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2021 Online Chat Groups for People with PWS

2022-08-30T15:38:29-08:00December 28th, 2020|

The online chat groups for people with PWS will continue on Zoom in 2021. These meetings are an excellent way for individuals with PWS to stay connected with others from all over California. Each week brings a fun activity for everyone to participate in. Some activities that we have done in the past include: arts and

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2021 Parent Sharing and Information Exchange Meetings with Childcare

2022-08-30T15:38:34-08:00December 28th, 2020|

We are taking a new approach to support groups in 2021. So that our families have the opportunity to share experiences and exchange information with others whose children are in the same stages, we will now host our quarterly meetings by age groups virtually on zoom. We will also provide a simultaneous zoom activity for your

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