The online chat groups for people with PWS will continue on Zoom in 2021. These meetings are an excellent way for individuals with PWS to stay connected with others from all over California. Each week brings a fun activity for everyone to participate in. Some activities that we have done in the past include: arts and
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We are taking a new approach to support groups in 2021. So that our families have the opportunity to share experiences and exchange information with others whose children are in the same stages, we will now host our quarterly meetings by age groups virtually on zoom. We will also provide a simultaneous zoom activity for your
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Join us for 5 days of fun activities for the whole family to enjoy! Read more details below and check your emails from PWCF for the links to register. Tuesday, December 1 at 2:00 PM PST - Holiday Hip Hop Dance Class with Luis Prado, PWCF Communications Assistant and Professional Hip Hop Dancer | Click here
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Make a donation to our Shining Star campaign and we'll name a star in honor or memory of someone in our night sky. The recipient will receive a certificate of ownership for their new star, and all donations go towards our mission of improving the lives of people with PWS in California. Simply write the name
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Our hearts go out to everyone affected by the wildfires in California. We wanted to share some helpful tips and information for maintaining your exercise routine while the air quality is so poor outside. Below is an excerpt from the full write up. If you would like to read the complete article, click here. "The wildfire
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November 7: Starting at 9 AM PST November 8: Starting at 1 PM PST LIVE on Zoom PWCF's Annual State Conference is going VIRTUAL in 2020! Join us from the comfort of your own home for this informative two-day event of LIVE presentations by leading PWS experts and professionals. Gain access to the most cutting edge
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Prader-Willi Syndrome Association | USA (PWSA | USA) and the Foundation for Prader-Willi Research (FPWR) have partnered to conduct a study to measure interest in telehealth as a way of increasing access to care from Prader-Willi syndrome specialists. In addition, the project aims to better understand the demographic makeup of the Prader-Willi syndrome (PWS) parent and
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Thank you to everyone who participated in our first ever Virtual Walk for PWS! With your help we were able to raise $54,000 toward providing a full life without limits for people with PWS. This year we were not able to physically walk together so instead we introduced the Team PWCF Challenge which allowed people to
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https://youtu.be/_a0HHMwBZG0 We are grateful to Mayim Bialik from “The Big Bang Theory” for lending her support to our Virtual Walk for PWS this year! Mayim will also have a special pre-recorded message for all of our participants on our Livestream event on August 1. Check out this video of Mayim announcing our Virtual Walk and Register to participate today!
Our annual Walk has gone virtual! Click here to visit our Walk page and find out how to participate!