2021 Online Chat Groups for People with PWS

2022-08-30T15:38:29-08:00December 28th, 2020|

The online chat groups for people with PWS will continue on Zoom in 2021. These meetings are an excellent way for individuals with PWS to stay connected with others from all over California. Each week brings a fun activity for everyone to participate in. Some activities that we have done in the past include: arts and

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2021 Parent Sharing and Information Exchange Meetings with Childcare

2022-08-30T15:38:34-08:00December 28th, 2020|

We are taking a new approach to support groups in 2021. So that our families have the opportunity to share experiences and exchange information with others whose children are in the same stages, we will now host our quarterly meetings by age groups virtually on zoom. We will also provide a simultaneous zoom activity for your

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PWCF All-Stars Week December 1 – 5, 2020

2022-08-30T15:38:40-08:00November 23rd, 2020|

Join us for 5 days of fun activities for the whole family to enjoy! Read more details below and check your emails from PWCF for the links to register. Tuesday, December 1 at 2:00 PM PST - Holiday Hip Hop Dance Class with Luis Prado, PWCF Communications Assistant and Professional Hip Hop Dancer | Click here

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Light Up the Night Sky!

2022-08-30T15:38:48-08:00November 19th, 2020|

Make a donation to our Shining Star campaign and we'll name a star in honor or memory of someone in our night sky. The recipient will receive a certificate of ownership for their new star, and all donations go towards our mission of improving the lives of people with PWS in California. Simply write the name

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Exercising Outside During CA Wildfires

2022-08-30T15:35:42-08:00September 14th, 2020|

Our hearts go out to everyone affected by the wildfires in California. We wanted to share some helpful tips and information for maintaining your exercise routine while the air quality is so poor outside. Below is an excerpt from the full write up. If you would like to read the complete article, click here. "The wildfire

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PWCF Virtual Conference 2020

2022-08-30T15:35:47-08:00August 27th, 2020|

November 7: Starting at 9 AM PST November 8: Starting at 1 PM PST LIVE on Zoom PWCF's Annual State Conference is going VIRTUAL in 2020! Join us from the comfort of your own home for this informative two-day event of LIVE presentations by leading PWS experts and professionals. Gain access to the most cutting edge

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PWSA | USA and FPWR Partner with Dr. Jennifer Miller for Telehealth Needs Assessment

2022-08-30T15:35:52-08:00August 13th, 2020|

Prader-Willi Syndrome Association | USA (PWSA | USA) and the Foundation for Prader-Willi Research (FPWR) have partnered to conduct a study to measure interest in telehealth as a way of increasing access to care from Prader-Willi syndrome specialists. In addition, the project aims to better understand the demographic makeup of the Prader-Willi syndrome (PWS) parent and

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Thank you for walking with us!

2022-08-30T15:35:58-08:00July 28th, 2020|

Thank you to everyone who participated in our first ever Virtual Walk for PWS! With your help we were able to raise $54,000 toward providing a full life without limits for people with PWS. This year we were not able to physically walk together so instead we introduced the Team PWCF Challenge which allowed people to

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Thank You, Mayim Bialik from The Big Bang Theory

2022-08-30T15:36:12-08:00June 29th, 2020|

https://youtu.be/_a0HHMwBZG0 We are grateful to Mayim Bialik from “The Big Bang Theory” for lending her support to our Virtual Walk for PWS this year!   Mayim will also have a special pre-recorded message for all of our participants on our Livestream event on August 1. Check out this video of Mayim announcing our Virtual Walk and Register to participate today! 


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