PWCF All-Stars Week December 1 – 5, 2020

2022-08-30T15:38:40-08:00November 23rd, 2020|

Join us for 5 days of fun activities for the whole family to enjoy! Read more details below and check your emails from PWCF for the links to register. Tuesday, December 1 at 2:00 PM PST - Holiday Hip Hop Dance Class with Luis Prado, PWCF Communications Assistant and Professional Hip Hop Dancer | Click here

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Light Up the Night Sky!

2022-08-30T15:38:48-08:00November 19th, 2020|

Make a donation to our Shining Star campaign and we'll name a star in honor or memory of someone in our night sky. The recipient will receive a certificate of ownership for their new star, and all donations go towards our mission of improving the lives of people with PWS in California. Simply write the name

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Exercising Outside During CA Wildfires

2022-08-30T15:35:42-08:00September 14th, 2020|

Our hearts go out to everyone affected by the wildfires in California. We wanted to share some helpful tips and information for maintaining your exercise routine while the air quality is so poor outside. Below is an excerpt from the full write up. If you would like to read the complete article, click here. "The wildfire

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PWCF Virtual Conference 2020

2022-08-30T15:35:47-08:00August 27th, 2020|

November 7: Starting at 9 AM PST November 8: Starting at 1 PM PST LIVE on Zoom PWCF's Annual State Conference is going VIRTUAL in 2020! Join us from the comfort of your own home for this informative two-day event of LIVE presentations by leading PWS experts and professionals. Gain access to the most cutting edge

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PWSA | USA and FPWR Partner with Dr. Jennifer Miller for Telehealth Needs Assessment

2022-08-30T15:35:52-08:00August 13th, 2020|

Prader-Willi Syndrome Association | USA (PWSA | USA) and the Foundation for Prader-Willi Research (FPWR) have partnered to conduct a study to measure interest in telehealth as a way of increasing access to care from Prader-Willi syndrome specialists. In addition, the project aims to better understand the demographic makeup of the Prader-Willi syndrome (PWS) parent and

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PWS Behavior Management Live Webinar Authorized to Offer 4 Hours ARF CEUs!

2022-08-30T15:36:21-08:00June 4th, 2020|

PWCF is now authorized by the Department of Social Services to offer Adult Residential Facility providers Continuing Education Units. The 2020 PWS Behavior Management Training Series, Change IS Possible, offers ARF providers 4 hours of CEUs for attendance at an In-Person conference or a Live Webinar. Training Slides are available in Spanish.  Register today for the Live Webinar on September

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Thank you, Jason!

2022-08-30T15:36:16-08:00May 22nd, 2020|

We would like to share our sincere gratitude and appreciation for Jason Huck, who has completed his trek through the Andean Volcano region in Ecuador, raising $5,051.44 for PWS in the process! Jason dedicated his trek to his nephew Pablo and to raising awareness for PWS. Below is a quote from his sister-in-law, Diana. "Dear Jason- Thank you very much

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Save the Date! Annual State Conference November 7, 2020

2022-08-30T15:36:27-08:00April 21st, 2020|

Our conference will be provided in a virtual format this year. Save the date today and be on the lookout for more information in the coming months! Join us for insight into important topics such as: • Sleep Issues in PWS, with Althea Shelton MD, Sleep Medicine Specialist at the Vanderbilt University PWS Clinic • Getting

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Happy Easter from PWCF

2022-08-30T15:36:33-08:00April 10th, 2020|

Celebrating Easter from home this year? PWCF wants you and your family to have a wonderful Easter no matter how you celebrate it. Check out our brand new Tips to Celebrate Easter Safely, by Lisa Graziano, MA., LMFT


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