Prader-Willi syndrome is a very complex syndrome encompassing a variety of potential medical concerns. It is important for all involved in the care of people who have PWS to be aware of these issues. Below we highlight areas of concern which either present unique challenges for PWS or may not present in a typical manner. As with any syndrome the presentation and severity of symptoms will vary by individual; parents are the best source of information for the individual’s specific history.
In addition to the information provided below, parents and medical professionals may contact PWCF at 800-400-9994 or PWSA-USA at 800-926-4797 to seek advice. We can consult with doctors from PWSA’s Medical Advisory Board to assist you with the appropriate care for your child or patient.