Our hearts go out to everyone affected by the wildfires in California. We wanted to share some helpful tips and information for maintaining your exercise routine while the air quality is so poor outside. Below is an excerpt from the full write up. If you would like to read the complete article, click here. "The wildfire
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November 7: Starting at 9 AM PST November 8: Starting at 1 PM PST LIVE on Zoom PWCF's Annual State Conference is going VIRTUAL in 2020! Join us from the comfort of your own home for this informative two-day event of LIVE presentations by leading PWS experts and professionals. Gain access to the most cutting edge
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Prader-Willi Syndrome Association | USA (PWSA | USA) and the Foundation for Prader-Willi Research (FPWR) have partnered to conduct a study to measure interest in telehealth as a way of increasing access to care from Prader-Willi syndrome specialists. In addition, the project aims to better understand the demographic makeup of the Prader-Willi syndrome (PWS) parent and
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Thank you to everyone who participated in our first ever Virtual Walk for PWS! With your help we were able to raise $54,000 toward providing a full life without limits for people with PWS. This year we were not able to physically walk together so instead we introduced the Team PWCF Challenge which allowed people to
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https://youtu.be/_a0HHMwBZG0 We are grateful to Mayim Bialik from “The Big Bang Theory” for lending her support to our Virtual Walk for PWS this year! Mayim will also have a special pre-recorded message for all of our participants on our Livestream event on August 1. Check out this video of Mayim announcing our Virtual Walk and Register to participate today!
Our annual Walk has gone virtual! Click here to visit our Walk page and find out how to participate!
PWCF is now authorized by the Department of Social Services to offer Adult Residential Facility providers Continuing Education Units. The 2020 PWS Behavior Management Training Series, Change IS Possible, offers ARF providers 4 hours of CEUs for attendance at an In-Person conference or a Live Webinar. Training Slides are available in Spanish. Register today for the Live Webinar on September
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We would like to share our sincere gratitude and appreciation for Jason Huck, who has completed his trek through the Andean Volcano region in Ecuador, raising $5,051.44 for PWS in the process! Jason dedicated his trek to his nephew Pablo and to raising awareness for PWS. Below is a quote from his sister-in-law, Diana. "Dear Jason- Thank you very much
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Our conference will be provided in a virtual format this year. Save the date today and be on the lookout for more information in the coming months! Join us for insight into important topics such as: • Sleep Issues in PWS, with Althea Shelton MD, Sleep Medicine Specialist at the Vanderbilt University PWS Clinic • Getting
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Celebrating Easter from home this year? PWCF wants you and your family to have a wonderful Easter no matter how you celebrate it. Check out our brand new Tips to Celebrate Easter Safely, by Lisa Graziano, MA., LMFT