PWCF News
keep up to date.
Current news at PWCF & what’s new with Prader-Willi syndrome.
2021 Parent Sharing and Information Exchange Meetings with Childcare
We are taking a new approach to support groups in 2021. So that our families have the opportunity to share experiences and exchange information with others whose children are in the same stages, we will now host our quarterly meetings
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PWCF All-Stars Week December 1 – 5, 2020
Join us for 5 days of fun activities for the whole family to enjoy! Read more details below and check your emails from PWCF for the links to register. Tuesday, December 1 at 2:00 PM PST - Holiday Hip Hop
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Light Up the Night Sky!
Make a donation to our Shining Star campaign and we'll name a star in honor or memory of someone in our night sky. The recipient will receive a certificate of ownership for their new star, and all donations go towards
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Exercising Outside During CA Wildfires
Our hearts go out to everyone affected by the wildfires in California. We wanted to share some helpful tips and information for maintaining your exercise routine while the air quality is so poor outside. Below is an excerpt from the
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PWCF Virtual Conference 2020
November 7: Starting at 9 AM PST November 8: Starting at 1 PM PST LIVE on Zoom PWCF's Annual State Conference is going VIRTUAL in 2020! Join us from the comfort of your own home for this informative two-day event
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PWSA | USA and FPWR Partner with Dr. Jennifer Miller for Telehealth Needs Assessment
Prader-Willi Syndrome Association | USA (PWSA | USA) and the Foundation for Prader-Willi Research (FPWR) have partnered to conduct a study to measure interest in telehealth as a way of increasing access to care from Prader-Willi syndrome specialists. In addition,
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Thank you for walking with us!
Thank you to everyone who participated in our first ever Virtual Walk for PWS! With your help we were able to raise $54,000 toward providing a full life without limits for people with PWS. This year we were not able
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Thank You, Mayim Bialik from The Big Bang Theory
https://youtu.be/_a0HHMwBZG0 We are grateful to Mayim Bialik from “The Big Bang Theory” for lending her support to our Virtual Walk for PWS this year! Mayim will also have a special pre-recorded message for all of our participants on our Livestream event on August 1. Check out this video of Mayim announcing our Virtual Walk
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VIRTUAL Walk for PWS 2020
Our annual Walk has gone virtual! Click here to visit our Walk page and find out how to participate!