PWCF News
keep up to date.
Current news at PWCF & what’s new with Prader-Willi syndrome.
A PWS Athlete’s Story
The PWCF Walks are now behind us, and from what I have heard they were once again amazing. This year, however, for first time in our family’s history we were not able to attend our Walk (the Southern California Walk).
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A Chance Encounter
“Nobody is promised tomorrow, stay strong and savor the moment.” – Nichole Broussard Prader-Willi syndrome appears in about every 1 out of 15,000 live births. It is the rare genetic syndrome that brings the PWCF community together every May to
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Thank you to the 2024 Walking for PWS Sponsors!
We appreciate all of the sponsors who are supporting the Walking for PWS events this year. Please click the links below to learn more about each of the sponsors. Harmony Biosciences - www.harmonybiosciences.com Soleno Therapeutics - www.soleno.life Acadia Therapeutics - www.acadia.com Aardvark
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Walking for PWS 2024
Register for the San Francisco Walk Register for the Fullerton Walk Register for the San Diego Walk Ready, Set, GLOW! The 24th annual Walking for PWS events are here! This year, we are going to GLOW. Find your favorite neon
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Shining Star High Score Leaderboard
Take a look at the many names on our High Score Leaderboard! Thank you to all of the individuals who have donated to our holiday campaign. *Score is not actually being kept. Every donation is awarded a placement on the
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TeamPWCF Rocks the Marathon
TeamPWCF represented the PWS community well at the Long Beach Marathon over the weekend of October 13th – 15th. It started with Team captain, Julie Casey, along with her husband Dan and son Ryan, setting up the information booth at
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Back to School Video for Members
Prepare yourself for the rest of the school year with an exclusive members-only presentation by Lisa Graziano, M.A., LMFT. PWCF is here to support and empower you as you parent your child during the school-age years. Below is a Quick
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Thank You 2023 General Education Meeting Sponsors
The Prader-Willi California Foundation would like to thank the generous sponsors who are supporting this year's General Education Meeting. Please visit each of their websites to learn more about their mission and impact on the Prader-Willi Syndrome. Thank you to the
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The Story of Theresa Sharpan
Families often find themselves wondering what life could possibly look like for their loved one with Prader-Willi syndrome (PWS). There is usually little clarity upon having a new diagnosis and sometimes that can be intimidating for new families. Now imagine
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