PWCF News
keep up to date.
Current news at PWCF & what’s new with Prader-Willi syndrome.
February 28 is Rare Disease Day!
Help us raise awareness for Prader-Willi syndrome by getting involved with one, or all, of these ways: Buy an Awareness Shirt In honor of this year’s theme “Show Your Colors”, we’ve created a shirt that you can wear not only
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Create a Valentine’s Day eCard for your loved one
Spread the love during the month of February and send a custom eCard to your loved one. Create a card here. Customize the cards to your liking! Include a personal message and a photo of your loved one or family
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Welcome the 2022 PWCF Board of Directors
PWCF would like to introduce the new 2022 Board of Directors roster. Please join us in giving a warm welcome to the following individuals. Jennifer Paige - President Melissa Estrada - Vice President Molly Fuller - Secretary Petra Martinez-Ali -
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Virtual PWCF Activities in 2022
As we look ahead into the year, we are excited to share that we will continue our various online activities for members to enjoy. These activities will be conducted over Zoom. The links will be shared with those that are
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Shine a light on your loved one today!
Shining Star is the yearly opportunity for the PWS community to reflect back love and support! With your support we were able to raise a grand total of $27,348. Take a look at a few fast facts about the Shining
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PWS Nutrition Workshop Series – No Cost for Members!
Join us for a special PWS nutrition training series presented by Leah Blalock, MS, RD, CSP, CDE. Each training will have a different focus and will be presented live on Zoom. Dates and further details on each session below. Each
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Masks Not Mandatory for Students with Disabilities
We would like to share an update for students with disabilities returning to in-person classes. The following excerpt is from the California Department of Education. "The California Department of Education (CDE) is committed to supporting schools, families, and communities during
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Diving Deep Into Managing PWS Behaviors
Register Here Join us for a brand new behavior management training series presented by Lisa Graziano, M.A., LMFT. This 7 part series will explore the different aspects of PWS behaviors and introduce various techniques you can implement to manage these
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Music and Movement Monthly Sessions with IEPSCV
The Include Everyone Project of Santa Clarita Valley (IEPSCV) is providing monthly music and movement sessions for PWCF members beginning on Saturday morning, February 27th. If you wish to receive emails containing links to this or any of our other activities,
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