Seeking advice from other parents? Do you wish you could expand your network within the PWS community? These share and support groups are open to PWCF members who wish to connect with other parents to share advice, exchange contact information and learn from one another's experiences. The groups will be divided by age.   RSVP Here Address: Beach Cities Health District 514

More >

Focus Session #4: Manage Obsessive-Compulsive Behaviors and When to Use Medication. This course will outline strategies to manage PWS’s obsessive-compulsive symptoms including skin picking, collecting, excessive talking, and excessive questions. We will describe how to respond to PWS’s unique symptom to confabulate, and false allegations of abuse. Finally, we will explore PWS’s psychiatric symptom profile, medication management,

More >

Looking to improve your understanding of your PWS resident/client? This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course will provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview

More >

We’re proud to be an official charity with the 2022 Long Beach Marathon / Aquarium of the Pacific Join TeamPWCF to help us raise awareness and funds at this popular race Experience the thrill of a lifetime as you cross the finish line knowing you’re supporting families affected by Prader-Willi syndrome Run, Jog, or Walk with

More >

The 2023 PWCF General Education Meeting returns to Northern California for the first time in 5 years. Join us at the DoubleTree Hotel in Sacramento, CA on Saturday, November 4 for a day of insightful presentations, interactive panels and much more. Date: November 4, 2023 Time: 8 AM - 5 PM.   8:00 am - Registration &

More >

Looking to improve your understanding of your PWS resident/client? This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course will provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview

More >

Shining Star is our annual holiday campaign that focuses on highlighting the individuals with PWS that shine so bright year-round. This year, every donation helps us move forward on the Giving Galaxy game board. Each donation made will receive a virtual Golden Star Card and will have their name displayed on our High Score Leaderboard that can

More >

Looking to improve your understanding of your PWS resident/client? This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course will provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview

More >

This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course is offered monthly to provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview of PWS-specific behavior management interventions and

More >

Karate with Cameron was a great success in 2023! Cameron Graziano will be teaching karate over Zoom again in 2024. Karate with Cameron will take place on Sundays at 4 PM PST, live on Zoom! Learn basic Karate moves with Cameron Graziano, who has a Black Belt in Tae Kwon Do as well as PWS. -

More >

No matter the age of your loved one with PWS or your experience level, you will learn something new at a PWS behavior management training session. Focus Sessions are a series of six 2-hour monthly webinars that provide in depth focus on all of the topics covered in an Overview Session. Attend the whole series or pick

More >

Part of the PWS journey is seeking community and aligning yourself with other individuals who are living with the syndrome as well. With PWCF, you are never alone. We will be offering multiple share and support group options in 2024 to cater to all areas. Please read on for group dates and further information.  Online Share

More >