Part of the PWS journey is seeking community and aligning yourself with other individuals who are living with the syndrome as well. With PWCF, you are never alone.

We will be offering multiple share and support group options in 2024 to cater to all areas. Please read on for group dates and further information.

 Online Share and Support Groups

These sessions are conducted through Zoom and available to members statewide. Register for the January session through the links below.

Dates: Jan. 31 | Apr. 17 | Jul. 10 | Oct. 16

Times:

Group 1: Birth to Age 3 Years – 9 to 10 AM PST | Register for 1/31 Date

This group is for families who have an infant or toddler diagnosed with PWS. Topics discussed typically include feeding issues; supplements and growth hormone medication; early intervention therapies such as OT, PT, and speech therapy; behavior management strategies; and how to maintain Regional Center eligibility at age 3.

Group 2: School Age (Ages 4 – 22) – 12 to 1 PM PST | Register for 1/31 Date

This group is for families who have a child diagnosed with PWS age 4-22. Topics discussed typically include how to manage unwanted behaviors; diet management; school-related services including IEP’s, how to get school-based therapies, high school transition programs; how to get Regional Center services; and how to get In-Home Support Service.

Group 3: Adulthood (Ages 17+) – 3 to 4 PM PST | Register for 1/31 Date

This group is for families who have an adult diagnosed with PWS. Topics discussed typically include how to manage unwanted behaviors; special needs trusts and wills, conservatorship; employment and day programs; and residential placement options.