Seeking advice from other parents?

Do you wish you could expand your network within the PWS community?

These share and support groups are open to PWCF members who wish to connect with other parents to share advice, exchange contact information and learn from one another’s experiences. The groups will be divided by age.

RSVP Here

Address:

Beach Cities Health District

514 N Prospect Ave,Redondo Beach, CA 90277

In Person Session Dates:

February 19 | June 4 | September 17

Times:

Birth to Age 3 Years – 10 – 11:30 AM PST

This group is for families who have an infant or toddler diagnosed with PWS. Topics discussed typically include feeding issues; supplements and growth hormone medication; early intervention therapies such as OT, PT, and speech therapy; behavior management strategies; and how to maintain Regional Center eligibility at age 3.

School Age and Adulthood – 12 to 1:30 PM PST

This group is for families who have a child diagnosed with PWS age 4-22. Topics discussed typically include how to manage unwanted behaviors; diet management; school-related services including IEP’s, how to get school-based therapies, high school transition programs; how to get Regional Center services; and how to get In-Home Support Service.

This group is also for families who have an adult diagnosed with PWS. Topics discussed typically include how to manage unwanted behaviors; special needs trusts and wills, conservatorship; employment and day programs; and residential placement options.