Renew Your 2021 Membership Today

2022-08-30T15:38:17-08:00February 2nd, 2021|

Renew your membership today for access to a growing community of families and professionals working together to achieve a full life without limits for people with PWS. Click here to renew your membership. Your membership includes exciting resources and new services in 2021 such as: Online Chat Groups for People with PWS - No ChargeAdaptive Fitness

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COVID-19 Vaccination Updates

2022-08-30T15:38:12-08:00January 19th, 2021|

Dear PWCF Member, We understand you have many questions about the Covid-19 vaccine. Below are some resources we hope you find helpful as you navigate the current situation. While we cannot offer medical advice, please know that PWCF is here to support you as you decide what is best for your family.  The Prader-Willi Syndrome Association

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PWSA | USA’s Statement Regarding People with PWS and COVID-19 Immunization

2022-08-30T15:38:22-08:00January 4th, 2021|

PWSA | USA has released an article on their site regarding the newest COVID-19 vaccines and their importance to people with PWS. "The types of vaccines now available against COVID-19 use mRNA technology.  This type of vaccine has been under development for many years and, unlike other immunizations, does not place a weak or inactive germ into the

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2021 Online Chat Groups for People with PWS

2022-08-30T15:38:29-08:00December 28th, 2020|

The online chat groups for people with PWS will continue on Zoom in 2021. These meetings are an excellent way for individuals with PWS to stay connected with others from all over California. Each week brings a fun activity for everyone to participate in. Some activities that we have done in the past include: arts and

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2021 Parent Sharing and Information Exchange Meetings with Childcare

2022-08-30T15:38:34-08:00December 28th, 2020|

We are taking a new approach to support groups in 2021. So that our families have the opportunity to share experiences and exchange information with others whose children are in the same stages, we will now host our quarterly meetings by age groups virtually on zoom. We will also provide a simultaneous zoom activity for your

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PWCF All-Stars Week December 1 – 5, 2020

2022-08-30T15:38:40-08:00November 23rd, 2020|

Join us for 5 days of fun activities for the whole family to enjoy! Read more details below and check your emails from PWCF for the links to register. Tuesday, December 1 at 2:00 PM PST - Holiday Hip Hop Dance Class with Luis Prado, PWCF Communications Assistant and Professional Hip Hop Dancer | Click here

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Light Up the Night Sky!

2022-08-30T15:38:48-08:00November 19th, 2020|

Make a donation to our Shining Star campaign and we'll name a star in honor or memory of someone in our night sky. The recipient will receive a certificate of ownership for their new star, and all donations go towards our mission of improving the lives of people with PWS in California. Simply write the name

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PWCF Virtual Conference 2020

2022-08-30T15:35:47-08:00August 27th, 2020|

November 7: Starting at 9 AM PST November 8: Starting at 1 PM PST LIVE on Zoom PWCF's Annual State Conference is going VIRTUAL in 2020! Join us from the comfort of your own home for this informative two-day event of LIVE presentations by leading PWS experts and professionals. Gain access to the most cutting edge

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PWSA | USA and FPWR Partner with Dr. Jennifer Miller for Telehealth Needs Assessment

2022-08-30T15:35:52-08:00August 13th, 2020|

Prader-Willi Syndrome Association | USA (PWSA | USA) and the Foundation for Prader-Willi Research (FPWR) have partnered to conduct a study to measure interest in telehealth as a way of increasing access to care from Prader-Willi syndrome specialists. In addition, the project aims to better understand the demographic makeup of the Prader-Willi syndrome (PWS) parent and

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