PWCF News
keep up to date.
Current news at PWCF & what’s new with Prader-Willi syndrome.
Conference Registration is Open!
Sign up today for our annual conference taking place on Saturday, October 14th. This year's conference: Help, Here and Now featuring Dr. Merlin Butler and Barb Dorn, will update you on the latest in PWS-related research and provide you with strategies
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Campers Have Fun at PWS Session
Earlier this month 49 campers ranging from 11 to 63 years old enjoyed 5 nights of fun-filled camp activities at Prader-Willi California Foundation’s special PWS session at Camp Harmon. The camp is set in a beautiful area with huge Redwood
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A Full Life Without Limits
National Prader-Willi Syndrome Awareness Month may be over, but at PWCF we work hard to raise awareness throughout the year. We know that less than half people with Prader-Willi syndrome in the United States are properly diagnosed and getting appropriate
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Join us for the 2017 JetBlue Long Beach Marathon
PWCF announces that they have been accepted, for the second year in a row, as an Official Charity in the 2017 JetBlue Long Beach Marathon Run, Jog, or Walk with us in the Aquarium of the Pacific 5K Run/Walk
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Family Fun Night with the Anaheim Angels
Saturday June 3 at 7:00 pm. Ticket price $28. A portion of each ticket sale benefits PWCF. Click here to purchase tickets.
HCBS Deadline Extended
Breaking News: FEDERAL GOVERNMENT ANNOUNCES EXTENSION TO COMPLY WITH HCBS FINAL RULE Marty Omoto of CDCAN reports "The federal agency that oversees Medicaid (called “Medi-Cal” in California) announced today that it will extend for all states the deadline to fully comply
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Dream Dinners Prader-Willi Syndrome Awareness Month Fundraiser
We're excited that Dream Dinners is helping us out in May as part of National Prader-Willi Syndrome Awareness Month! Special Offer for this Fundraiser! For just $34.99, you will assemble 3 three-serving meals to take home and enjoy with your
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PWS Behavior Management Strategies Conference: Beyond the Basics
PWS Behavior Management Strategies: Beyond the Basics May 21 | 10:00 a.m. - 3:00 p.m. | PWCF Offices | Redondo Beach Need a refresher or need to learn more sophisticated PWS-specific behavior management strategies? This is the course for you!
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High Court Backs More Robust Standard For FAPE
The following article was written by Michelle Diament, March 22, 2017, Disability Scoop The U.S. Supreme Court set a higher bar for school districts in a ruling this week addressing IDEA's mandate that public schools provide kids with disabilities a
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