PWCF News
keep up to date.
Current news at PWCF & what’s new with Prader-Willi syndrome.
The Story of Theresa Sharpan
Families often find themselves wondering what life could possibly look like for their loved one with Prader-Willi syndrome (PWS). There is usually little clarity upon having a new diagnosis and sometimes that can be intimidating for new families. Now imagine
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Walking for PWS 2023
PWCF is going on tour! Kind of. We're excited to see you all again this year in-person for our 2023 Walking for PWS events. We will be making our way up the state of California between April 30 and May
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KITE-PWS is Seeking Participants for PWS Research Study
KITE-PWS is currently recruiting for their clinical trial that is seeking people aged 17 years and older with excessive hunger caused by PWS to participate. The experimental study drug, called RGH-706, helps to block melanin- concentrating hormone (MCH), which is
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2022 Long Beach Marathon Event Recap
After three years, TeamPWCF returned as an official charity at the Long Beach Marathon/Aquarium of the Pacific 5K. It was a beautiful race weekend filled with raising awareness. Representing eleven loved ones who have Prader-Willi syndrome, TeamPWCF had thirty-three people
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Meet the Speakers for the 2022 General Education Meeting
PWCF is proud to announce the 3 incredibly insightful and highly respected speakers for the 2022 General Education Meeting. Their range in topics and expertise in their fields have provided positive change in the PWS community. We are honored to
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Join us at the 2022 PWCF General Education Meeting
Knowledge IS Power. Strengthen your perspective on Prader-Willi Syndrome at the GEM. Date: Saturday, October 15 at the Sonesta LAX Airport Hotel Time: 8 AM - 5 PM. Schedule and speakers to be released soon. *Early Bird Special: Receive admission to the conference for
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Thank you to the 2022 Walking for PWS Sponsors!
Thank you to the following sponsors for supporting the 2022 Walking for PWS events. With their support we are one step closer to a Full Life Without Limits for people with Prader-Willi syndrome. Please take a moment to visit their
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February 28 is Rare Disease Day!
Help us raise awareness for Prader-Willi syndrome by getting involved with one, or all, of these ways: Buy an Awareness Shirt In honor of this year’s theme “Show Your Colors”, we’ve created a shirt that you can wear not only
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Create a Valentine’s Day eCard for your loved one
Spread the love during the month of February and send a custom eCard to your loved one. Create a card here. Customize the cards to your liking! Include a personal message and a photo of your loved one or family
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