Walking for PWS 2023: Northern CA
Little Marina Green 800 Marina Blvd., San Francisco, CA, United StatesPWCF is going on tour! We're excited to see you all again this year in-person for our 2023 Walking for PWS events. We will be making our way up the state of California between April 30 and May 20 stopping at three major cities to bring the fun of our Walks to our PWCF community. On […]
Online Share and Support Groups
Share advice and tell your story with other parents at the quarterly Share and Information Exchange groups happening Wednesday, October 25. These groups are a viable resource to expand your network and create meaningful connections with other parents affected by Prader-Willi Syndrome. You are never alone in your PWS journey. Use the links below to register […]
Residential Staff Overview Training: July 2023
ZoomLooking to improve your understanding of your PWS resident/client? This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course will provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview […]
Share and Support Groups – Live on Zoom!
Share advice and tell your story with other parents at the quarterly Share and Information Exchange groups happening Wednesday, July 26. These groups are a viable resource to expand your network and create meaningful connections with other parents affected by Prader-Willi Syndrome. You are never alone in your PWS journey. Use the links below to register […]
PWS Residential Staff Training Focus Session #2
ZoomFocus Session #2: Strategies to Reduce Oppositionalism and Arguing. The course will provide an overview of the ubiquitous nature of anxiety in PWS and provide specific strategies that help reduce this anxiety and therefore reduce maladaptive, unwanted behaviors. Specifically, this course will focus on strategies to respond to PWS’ low tolerance to frustration and disappointment, oppositional thinking, […]
Residential Staff Overview Training: August 2023
ZoomLooking to improve your understanding of your PWS resident/client? This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course will provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview […]
PWS Residential Staff Training Focus Session #3
ZoomFocus Session #3: Strategies to Improve Cooperation. This course will provide an overview of the ubiquitous nature of anxiety in PWS and provide specific strategies that help reduce this anxiety and therefore reduce maladaptive, unwanted behaviors. Specifically, this course will clarify that punishment and consequences are not effective with residents with PWS and in fact can increase […]
Behavior Management Family Session #5
ZoomRegister Today Join us as we share PWS-specific behavior management interventions that reduce arguing and power struggles and improve cooperation. Hosted by Lisa Graziano, M.A., LMFT, each live Zoom training in this 6-part series features learning-enhanced role play fun and allows plenty of time for your specific questions. Registration includes the handouts and video of all […]
Residential Staff Overview Training: September 2023
ZoomLooking to improve your understanding of your PWS resident/client? This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course will provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview […]
Behavior Management Family Session #6
ZoomRegister Today Join us as we share PWS-specific behavior management interventions that reduce arguing and power struggles and improve cooperation. Hosted by Lisa Graziano, M.A., LMFT, each live Zoom training in this 6-part series features learning-enhanced role play fun and allows plenty of time for your specific questions. Registration includes the handouts and video of all
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In-Person Share and Support Groups (September 2023)
Beach Cities Health District 514 N Prospect Ave UNIT 102, Redondo Beach,, CASeeking advice from other parents? Do you wish you could expand your network within the PWS community? These share and support groups are open to PWCF members who wish to connect with other parents to share advice, exchange contact information and learn from one another's experiences. The groups will be divided by age. RSVP Here Address: Beach Cities Health District 514 […]
PWS Residential Staff Training Focus Session #4
ZoomFocus Session #4: Manage Obsessive-Compulsive Behaviors and When to Use Medication. This course will outline strategies to manage PWS’s obsessive-compulsive symptoms including skin picking, collecting, excessive talking, and excessive questions. We will describe how to respond to PWS’s unique symptom to confabulate, and false allegations of abuse. Finally, we will explore PWS’s psychiatric symptom profile, medication management, […]