Fun and Fitness with Brad Clark – Thursdays, August 26 – November 11
Join Brad Clark of BC Adaptive Fitness and PWCF for “Fun & Fitness” from 4 – 4:45 PM PST on Thursdays! No charge for current PWCF members. Ages 14 and older are welcome. The next 12 week session begins on August 26 and ends on November 11. Participants can track their progress by earning virtual
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Music and Movement with IEPSCV September 2021
The Include Everyone Project of Santa Clarita Valley (IEPSCV) is providing monthly music and movement sessions for PWCF members. If you wish to receive emails containing links to this or any of our other activities, please opt into our Weekly Activities Mailing list. Participants are required to sign a waiver before participating in any PWCF activity. The
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Diving Deep Into Managing PWS Behaviors – Session 6: Manage Obsessions and Reduce Picking Behavior
Join us for a brand new behavior management training series presented by Lisa Graziano, M.A., LMFT. This 7 part series will explore the different aspects of PWS behaviors and introduce various techniques you can implement to manage these behaviors. If you are unable to tune in live, no worries. Registration includes a downloadable recording of each
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2021 Virtual Mini Conference
Join us Saturday, November 6th at 9:00 AM live on Zoom. Reserve your ticket here. Access to the conference is available at no cost for current PWCF members. Not current on dues? Renew your 2021 membership here. Those who are current on dues may take advantage of our Early Bird 2022 membership renewal by clicking here.
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Shining Star 2021
Shining Star is the yearly opportunity for the PWS community to reflect back love and support! Contribute to the star map below and dedicate a star to your loved one by clicking here. Every donation counts as one star and will be numbered accordingly. Donors receive a receipt and a numbered star certificate. Check back through
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PWS Specific Holiday Nutrition Training presented by Leah Blalock
Join us for a special holiday themed nutrition training: How to Make Fun and Nutritious Recipes for the Holidays and the New Year on Saturday, December 18 at 10:00 AM PST presented by Leah Blalock, MS, RD, CSP, CDE. Register for Session 3 here. This is the final training in the PWS Nutrition Training Series
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Quarterly Parent Information Exchange and Share Groups
We are continuing our virtual information exchange and share groups for parents in 2022. These groups present an opportunity to connect with other families who may be going through a similar journey as your own. Exchange contact information, share advice or simply lend a helpful ear for someone live on Zoom. More details below. Dates:
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Create Your Own PWCF Valentine’s eCard Today
Spread some love this month by sending a custom Valentine's card to your loved ones! PWCF would like to offer Valentine's eCards for our members to send to their loved ones at no charge. Customize your card by adding a custom message and a picture. Click here to get started. In addition to the card we would also
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February 28 is Rare Disease Day!
Help us raise awareness for Prader-Willi syndrome by getting involved with one, or all, of these ways: Buy an Awareness Shirt In honor of this year’s theme “Show Your Colors”, we’ve created a shirt that you can wear not only on Rare Disease Day, but all year long. In keeping with the theme, this fun colorful
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PWCF’s Educational Efforts Extend Across the Pond
TightFittingGenes is a podcast produced by Haritha Raghaven, a student at the University of Glasgow who is studying Human Medical Genetics. Tune in to the podcast on your favorite platform today! "I’ve been studying Prader-Willi syndrome and believe the best way for me to know more about it is through real life conversations. Studying with a group of aspiring
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Walking for PWS 2022: Southern California Walk
Ted Craig ParkRegister for the Southern California Walk Here We are excited to announce that our annual Walk for PWS events are returning to an in-person capacity this year. Join us at one of our 3 walk sites and help us spread awareness of Prader-Willi Syndrome. Don't forget to create your peer to peer fundraising page here. Read
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Walking for PWS 2022: San Diego Walk
Rohr ParkRegister for the San Diego Walk Here We are excited to announce that our annual Walk for PWS events are returning to an in-person capacity this year. Join us at one of our 3 walk sites and help us spread awareness of Prader-Willi Syndrome. Don't forget to create your peer to peer fundraising page here. Read
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