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We are continuing our virtual information exchange and share groups for parents in 2022. These groups present an opportunity to connect with other families who may be going through a similar journey as your own. Exchange contact information, share advice or simply lend a helpful ear for someone live on Zoom. More details below.


Dates: Wednesdays – January 12 | April 27 | July 27 | October 26



Group 1: Ages 0 to 3 – 10 to 11 AM PST | Link to Meeting

This group includes all families who have an infant or toddler with PWS. We will cover topics such as feeding, G-tubes and NG-tubes, supplements, growth hormone, and early intervention therapies like feeding therapy, OT, and PT.



Group 2: School Age (Ages 4 – 22) – 12 to 1 PM PST | Link to Meeting

This group includes all ages of children 4 – 22 who are in the school system. Topics discussed may include behavior inside the home and at school, IEP’s, OT, PT, Speech Therapy, other related school services, IHSS, nutrition, high school transition programs, and social skills.



Group 3: Adulthood (Ages 17+) – 5 to 6 PM PST | Link to Meeting

This group is for parents of adults and those approaching adulthood ages 17 and older. Topics may include behavior, residential placement, conservatorship, special needs trusts and wills, employment and day programs.

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