HCBS Deadline Extended

2022-08-30T15:33:16-08:00May 10th, 2017|

Breaking News: FEDERAL GOVERNMENT ANNOUNCES EXTENSION TO COMPLY WITH HCBS FINAL RULE Marty Omoto of CDCAN reports "The federal agency that oversees Medicaid (called “Medi-Cal” in California) announced today that it will extend for all states the deadline to fully comply with the 2014 Medicaid Home and Community Based Services Final Rule.  Prior to the extension, the

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Dream Dinners Prader-Willi Syndrome Awareness Month Fundraiser

2017-04-12T02:25:59-08:00April 12th, 2017|

We're excited that Dream Dinners is helping us out in May as part of National Prader-Willi Syndrome Awareness Month! Special Offer for this Fundraiser! For just $34.99, you will assemble 3 three-serving meals to take home and enjoy with your family. Plus, during this exclusive event, $10 from each order purchased is automatically donated back to

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High Court Backs More Robust Standard For FAPE

2022-08-30T15:33:28-08:00April 9th, 2017|

The following article was written by Michelle Diament, March 22, 2017, Disability Scoop The U.S. Supreme Court set a higher bar for school districts in a ruling this week addressing IDEA's mandate that public schools provide kids with disabilities a free appropriate public education. In a unanimous ruling with major implications for special education, the U.S. Supreme Court

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Harry Potter Has Dypraxia… Just Like Me!

2022-08-30T15:33:47-08:00February 2nd, 2017|

Harry Potter is a hero to a generation of kids and their parents who are fans of the books. But actor Daniel Radcliffe, who plays the clever wizard in the Harry Potter movies, has also become a hero, of sorts. He's speaking out for kids with dyspraxia, a condition that makes it hard to plan and

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Thanksgiving Celebration Tips

2022-08-30T15:31:39-08:00November 22nd, 2016|

PWCF wishes you and your loved ones a wonderful Thanksgiving celebration! To help keep things safe, share the Safety Tips & Techniques for the Holidays handout with everyone with whom you're celebrating. If your loved one is coming home from residential care, please review PWSA (USA)'s Going Home for the Holidays for some life-saving strategies. Remember to "Paint the Picture"

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Annual Conference Packed with Information

2016-11-13T02:38:29-08:00November 13th, 2016|

Our annual conference was a tremendous success with expert guest speakers and great community participation. Last weekend over 150 parents and professionals met in Sacramento to improve the lives of those affected by PWS. "As devastating as {the diagnosis} was and definitely life changing, once we hooked up with PWCF we had so much support, so

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PWCF Honors Outstanding Service at Annual Conference

2016-11-13T02:37:12-08:00November 13th, 2016|

  After her presentation PWCF surprised Dr. Suzanne Cassidy with an award for Lifetime of Excellence in Prader-Willi Syndrome. During the annual business meeting that followed, two more outstanding women were honored: Fran Moss, PWCF’s first Executive Director received a Devoted Executive Director award  Renee Tarica, one of PWCF’s founders and long-time treasurer received an award

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Your Vote Mattered!

2016-11-09T16:00:06-08:00November 9th, 2016|

Thank you to all those who mailed in ballots or voted in person at the Annual Conference on Saturday. The results of the 2016 Election for PWCF's Board of Directors are in! We congratulate incumbents Diane Kavrell and Daniela Rubin, Ph.D. who were elected for another term, along with Julie Casey and Christopher Patay, both of

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National Obesity Care Week

2022-08-30T15:31:45-08:00November 3rd, 2016|

National Obesity Care Week.  Support National Obesity Care Week to help ensure that anyone affected by the disease of obesity receives respectful and comprehensive care.

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