PWCF Wishes our Members, Professionals, and Supporters A Wonderful Holiday Season and a Happy New Year! Be a Shining Star this year to brighten the way to fulfill our mission; Support the 2018 Shining Star Campaign. Your tax-deductible gift means we can continue to provide: Parent Education Programs Professional Training Programs PWCF’s Camp Multidisciplinary PWS Clinics
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New rules and regulations significantly affect adults with disabilities who receive Federal funding for residential services (group homes and supported living services), day programs, and vocational work sites. Arguably the most significant provision is that “individuals have freedom and support to control their schedules and activities and have access to food any time.” For persons with PWS this provision can
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PWCF developed a new tool to help you get the supports and services your child needs to be safe and successful at school. Your IEP Team typically needs justification and documentation before it will provide the supports you're requesting, so PWCF developed a new Physician's Note Symptom & Treatment Checklist. Completed by you and your child's physician, this
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Sign up today for our Annual State Conference taking place on Saturday, October 27th, 2018 in Sacramento. This year's conference: Your California Community brings focus to the importance of connecting with your local PWS community. Working together we can create more understanding, more support, more hope, and better outcomes for every person in the life of someone
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PWCF's 18th Annual Walking for Prader-Willi Syndrome Click Here to vist our Walk Page! Southern California: April 29 at Griffith Park, Los Angeles Central California: May 5 at Dry Creek Park, Clovis Northern California: June 2 at Lagoon Park, San Rafael Virtual Walk Yard Sign: All Year Long! Walk 2018 Brochure | Walk 2018 Flyer
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We're pleased to announce a new video to give you the tools you need to reduce unwanted behavior common among persons with PWS. PWS - Behavior Management Strategies: Beyond the Basics This four hour training course presented by Lisa Graziano, M.A., former Executive Director of PWCF and mother of a young adult with PWS, covers topics including how
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Saturday June 3 at 7:00 pm. Ticket price $28. A portion of each ticket sale benefits PWCF. Click here to purchase tickets.
Breaking News: FEDERAL GOVERNMENT ANNOUNCES EXTENSION TO COMPLY WITH HCBS FINAL RULE Marty Omoto of CDCAN reports "The federal agency that oversees Medicaid (called “Medi-Cal” in California) announced today that it will extend for all states the deadline to fully comply with the 2014 Medicaid Home and Community Based Services Final Rule. Prior to the extension, the
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PWS Behavior Management Strategies: Beyond the Basics May 21 | 10:00 a.m. - 3:00 p.m. | PWCF Offices | Redondo Beach Need a refresher or need to learn more sophisticated PWS-specific behavior management strategies? This is the course for you! This full-day Parent Conference will also benefit extended family members, babysitters, teachers, and residential providers. Anyone
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The following article was written by Michelle Diament, March 22, 2017, Disability Scoop The U.S. Supreme Court set a higher bar for school districts in a ruling this week addressing IDEA's mandate that public schools provide kids with disabilities a free appropriate public education. In a unanimous ruling with major implications for special education, the U.S. Supreme Court
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