Ever wonder how your donations help? Curious about what the PWCF staff, Board members, and committees do? We work hard to support the needs of our members, while at the same time educating others and raising awareness. Here is a partial list of our activities between March 15 and June 3:
- Welcomed 4 new families
- Mailed 9 Information & New Member Packets
- Provided 11 Behavior Training Programs to families
- Provided 1 Vocational Work Site training
- Presented at Childhood Obesity Bay Area Conference
- Presented at PWSA Utah Conference
- Presented Behavior Management Strategies for the Young Child PWSA (USA) webinar
- Attended 11 IEPs and school meetings
- Provided 2 Residential Staff Training sessions
- Held Walking for PWS event at Griffith Park
- Wrote to Assemblywoman Gonzales to oppose AB 2855
- Hosted L.A. County Support Group
- Supported San Francisco Support Group
- Advertised opportunities for multiple research studies
- Prepared advocacy letter for growth hormone prescription
- Provided advocacy support about conservatorship
- Provided advocacy information about medical alert products
- Provided advocacy information about scoliosis surgery
- Provided advocacy letter for release from Jury Duty
- Provided advocacy information about psychotropic medications
- Provided advocacy support regarding disruptive behavior
- Conducted multiple parent education training sessions
- Prepared advocacy letter for Social Security Disability Insurance
- Provided advocacy work regarding Day Program
- Provided advocacy information regarding service dogs
- Prepared advocacy letter regarding Central Adrenal Insufficiency treatment
- Supported member-artist’s Art Show
- Hosted PWS Info Booth at Global Genes Denim Dash
- Posted regularly on Facebook and Twitter including daily PWS facts throughout May for National Prader-Willi Syndrome Awareness Month
