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PWCF maintains a library of helpful brochures about PWS that summarize various symptoms as well as their treatments, interventions, and management strategies. Brochures are written for parents, extended family and friends, and professionals including physicians, therapists, teachers, residential providers, and day program and work site providers. Single copies are free; just click and print. To purchase multiple copies, please contact us at info@pwcf.org or 310-372-5053. Overview of PWS for Families Overview of PWS for Professionals and the Public Core Therapies for the Child with PWS Education and Training Services from PWCF Food Security in the School Setting Food Security in the Work Setting How to Read Food Labels Nutrition and Activity Guidelines Overview of Food and Behavior Management Someone You Know Has PWS: How Can You Help? Speech and Language Therapy for the Individual with PWS Synopsis of PWS -
Lisa Graziano, M.A., LMFT brings you an in-depth look at managing PWS behaviors through a 7-part webinar series. One price includes all 7 training sessions! Each session is 1-hour long and has a different focus. Purchasing this training includes handouts and a downloadable recording for each session. Session focuses are listed below: Session 1: It All Begins with Food Security, Anchoring Your Self and Empathy Session 2: Manage Oppositionalism and Avoid Defiant Behavior Session 3: Create an Anxiety-Free Environment Session 4: Reduce Food Stealing and Weight Gain Session 5: Why Can’t He Just Admit a Mistake? Session 6: Manage Obsessions and Reduce Picking Behavior Session 7: Manage Impulsivity, Non-Food Theft, Confabulating and Lying -
*Shipping available for U.S only. New in 2015, this DVD provides strategies to avoid, reduce and manage unwanted behaviors frequently associated with PWS. Parents of the toddler or young child will learn how to create a foundation that encourages cooperative interactions throughout the lifetime. Parents and care providers of the older child, teen, or adult will learn strategies to improve the flow of the day and everyone’s quality of life. Total run time 3 hours. -
*Shipping available for U.S only. PWCF and the Prader-Willi Syndrome Association (USA) created this DVD to provide Residential Service Providers with critical information about how Prader-Willi syndrome impacts their residents. Viewed consecutively or independently, each of the ten sections addresses key areas, providing an overview of the subject matter and specific tools and strategies to improve the quality of life for residents and providers alike: Physiology, Home Set-Up, Psycho-social Management, Behavioral Management, Crisis Intervention, Communication Management, Weight Management, Family Involvement, Community Involvement, and Behavior Management Programs. Vocational Work Site providers, Day Program providers, and other care providers will find the information contained within this DVD most helpful. This concise production is designed to be used as a training tool for professional care providers. Working together, we will help individuals born with Prader-Willi syndrome live a meaningful and productive life and pursue their hopes and dreams to the full extent of their talents and capabilities. Price includes shipping.
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This DVD is a taping of California’s 2011 mini-conference for parents, care providers, extended family members, and professionals who live or work with a child or adult with Prader-Willi syndrome. Features PWS specialist Janice Forster, M.D. who helps answer the questions, “Why people with Prader-Willi syndrome do what they do, and what can we do about it.” Total run time 2 hours.
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Thumbdrive of our new Behavioral Management Video **Shipping available for U.S only.
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*Shipping available for U.S only. Provides teachers with an introduction and overview of the issues associated with PWS and demonstrates and describes pragmatic strategies that school staff can use to support the success of a student with PWS in their classroom. Viewers have the choice to watch successful strategies for upper grades or for lower grades. An essential tool for all educators and related services staff.
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Help increase awareness of PWS. Wear your PWS glow-in-the-dark wristband! Each band reads: Prader-Willi Syndrome www.pwcf.org **Shipping available for U.S only.
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Raise awareness by displaying a PWS WALK sign in your yard!
