Board of Directors

Hello. I’m Lisa Salazar, an Orange County resident and mother of a young adult (Darin Murphy) with PWS. Professionally, I am a career scientist working to better understand how the brain works, how this is altered in disease, and how it may be targeted therapeutically. As Darin’s mom, I have helped him navigate each stage of growing up, working with doctors and therapists, teachers and day programs to ensure his success and well-being. The resources available through PWCF were invaluable to us. I am passionate about helping people with disabilities improve their lives and achieve their goals. It has been my great privilege to volunteer at the Shea Center for Therapeutic Horseback Riding for more than 15 years, and to talk about PWS to Shea Center therapists and volunteers, as well as first-year medical students at the University of California, Irvine. I would be honored to further serve the PWS community as a member of the PWCF Board of Directors.

I live in Redondo Beach, California with my husband, Minesh, and three kids, Siena (who has PWS), Melina and Jaiden. Our family loves to travel, spend time with family, and watch movies. We have been an active member of PWCF since Siena was born 16 years ago, and have so much gratitude for all of the support and guidance we have received from PWCF. It has been an honor to be on the Board for the past 9 years, serving in various roles and giving back to the PWS community. I have worked in Strategic Planning, and have an MBA in Marketing and Entrepreneurial Management from Wharton Business School.

Diane had previously served as a PWCF Board of Directors president and board member for 6 years. Over those 6 years she was heavily involved in the planning of the General Education Meetings, the Finance Committee, the Residential Services Committee and hosted the SF Walk. She currently resides in Davis, California with her husband of 25 years, Brandon and is a mom to 3 children. Her son Jackson is 25 and a college graduate who has returned home to begin his career. Haley, her 24-year-old daughter with PWS is a High School Graduate and is currently enjoying her day program. Quinn, her youngest, is currently attending the University of California Irvine. On her free time, Diane loves to golf, do CrossFit and run to keep fit.

My name is Shandra Beer and I am mom to Emile, with Prader Willi Syndrome. She and her twin brother, Kyle, are almost twenty. My first call to the PWCF was when Emile was 3 1⁄2 years old and we had just received her diagnosis. I’ll always remember the way I was welcomed and given hope for a bright future for my daughter. Now, it is time for me to be a part of this vital organization. I see my role on the board as an opportunity to continue to support and advocate for families impacted by the syndrome during all stages of life. I am specifically concerned with continuing to raise awareness in the larger community and educating direct care staff working in schools and homes. I also hope to impact the programs and supports that are available to our young adults and aging population. I am currently an elementary teacher in Temecula where I live with my husband. My teaching career began in 1994. This teacher/mom combination makes me driven to strongly advocate for children and have an understanding heart for those that love and care for them.

I am the proud husband to Elena and the proud dad to Sienna Grace. I am a Worship Pastor and my Elena is a Social Worker with the Parkinson’s Foundation and previously with Hospice and the Alzheimer’s Association. Our little family has moved around quite a bit, landing in California in 2020 (during COVID) in Hanford (next to Visalia and about 45 minutes south of Fresno). Elena was born in Bakersfield, but grew up in Mexico as her parents served as missionaries there. Her family is now all located here in California, so we are close to family for the first time in our marriage and we love it.

As the mother of a two year old Prader- Willi warrior, I am moved to use my expertise to help amplify awareness and ensure that all members gain knowledge and access to the most impactful experiences with the foundation. I have worked in Marketing in both the financial & media sector for more than 10 years. I assist leading firms implement strategic media plans that integrate social capital into their overall branding strategy. I look to provide PWCF with dynamic, curated marketing solutions that will increase brand awareness and member participation. Thank you for your consideration.

I joined the PWCF community around 2012 when I became my Sister, Brooke’s Guardian. Brooke lives in Grand Rapids, Michigan, where we grew up. I have been a part of the PWS community for forty years, and I am eager to become more involved with the PWCF community since I live in California. I know it takes a community of people to support each other through the challenges of advocacy and ensuring the health and safety of people with disabilities, a notoriously marginalized group. This community has been an integral source of support for my family and me. I am an entrepreneur with 17 years of experience creating dynamic strategies for brand development, product/service alignment, and revenue growth. I am a Co-Founder of Hands On Gourmet, a dynamic, experiential event and catering company based in San Francisco, California. I live in Tahoma, California.

I am a pediatric endocrinologist in private practicing in Santa Monica since 1997 and at Cedars Sinai Health Center since 2020. I have a special interest in the treatment of hormonal conditions that are common in patients with Prader-Willi Syndrome. Through years of working with many PWS patients, I have learned about the profound challenges that these individuals and their families face not just in terms of health, but in every aspect of life. It has been an honor to participate at PWCF General Educational meetings in 2013 and 2022 to provide lectures on endocrine topics. Now I am excited to serve on the board of PWCF and find new ways to support these special families.

Rodney Dong is a proud father to Kiran, a 10 year old boy with PWS, and lives with him, his wonderful wife Gail and his mischievous cat Loki in Valencia in sunny Southern California. He is originally from Vancouver, Canada, and is a Board Certified Music Therapist specializing in work with children and youth with developmental disabilities. Rodney was first introduced to PWCF shortly after his son Kiran was diagnosed with PWS, and the incredible amount of support he and his wife received eventually led to him serving as a Board Member for over 4 years. He is passionate about running and as such is heavily involved with both PWCF’s Marathon and Walk Events each year, and well as other fundraising events. He is also very passionate about the performing arts, and as Vice President for the non-profit Include Everyone Project of the Santa Clarita Valley (IEPSCV) helps facilitate the Music and Movement Groups with PWCF’s members each month.

I am the mother of four children, grandmother to three beautiful granddaughters, and a new grandson. I’m a clinical geneticist initially trained in the U.K at St Bartholomew’s and the Royal London Hospital, London. My specialist training is in pediatrics and genetics. I have an interest in rare diseases, and for the challenges individuals with Prader-Willi Syndrome and their families face. I completed genetics training at UC-Irvine and won the 2010 WSPR David W. Smith Trainee Research award for PWS research, and previously served as a Board member for the International Prader-Willi Syndrome Association (IPWSO). I currently work as an Associate Professor in Pediatrics, Division of Genetics at Loma Linda University Medical Center and at University of California – Irvine, where I lead the only PWS Adult Clinic in California.

I am a native of Argentina and in 1999 I began my studies at the University of North Carolina Chapel Hill. I moved to CA shortly after obtaining my Ph.D. to work at California State University Fullerton in the Department of Kinesiology. I have been in CA since then. My husband Ricky Garcia and I live in North San Diego County, CA. We enjoy being physically active, and we try
to spend our weekends being outdoors. My professional interest is the promotion of an active lifestyle in children and adolescents. In the past years I have been privileged to meet so many families with a child who has Prader-Willi syndrome because of the research I do and my involvement with Prader-Willi California Foundation PWCF. I hope to continue to serve the mission of the PWCF by my involvement in the Board.

I live in Murrieta, CA. I served in the United States Marine Corps for 27 years of active duty service, and 3 years as a Contracted Instructor at MCAS Miramar. I was the leading board member in the development of the Marine Corps Mentorship Program (MCMP). I have immersed myself in the PWS arena from the caregiver and resource counselor perspective for the past 5 years, gaining first-hand knowledge from parents, physicians, and individuals who are afflicted with PWS. My experiences could never match the challenges parents face, having a child with PWS. I am committed to put the knowledge I have obtained into action, as a PWS Board Member. I am willing and wanting to make a difference.