Thank you for visiting our website. Your interest shows a true dedication to providing the highest quality service to your patient or client. This section is designed to give you an idea of the complexity of the needs of individuals diagnosed with Prader-Willi syndrome. There are literally hundreds of additional articles, books, and videos on various topics in addition to the few listed below. So, if you don’t find what you’re looking for or if you would like to schedule a consultation or a training, please contact us at 800-400-9994 or info@pwcf.org.

Grant Application for PWS Clinics

PWCF is proud to support our multi-disciplinary PWS clinics. The next window will open in early February 2025.

General Information

A Synopsis of Prader-Willi syndrome brochure
Behavior Management Tool Kit 
Diet – Need to Know Nutrition for Families and Professionals 
Education and Training Services Provided by PWCF
Least Restrictive Environment – Eating Themselves to Death 
PWS Overview Training Video for Professionals
PWS Environmental Basics
Nutrition & Activity Guidelines brochure
What is Prader-Willi Syndrome

Information Especially for Attorneys

Allegations of Abuse or Neglect
Facts About PWS that Conservatorship Attorneys Need to Know
Lying and Confabulating
Theft
To Law Enforcement Regarding Abuse 
To Law Enforcement Regarding PWS

Information Especially for Educators

PWCF provides behaviorally-focused training to any school serving a student with PWS. Contact PWCF to learn more or to schedule your PWS School Training.

Behavior Management Tool Kit: Go to the Parents page, scroll down to Behavior Management tab
Food Security in School brochure 
Food in the Classroom is Never OK
School Training Handout
We Are Not Helicopter Parents

Information Especially for Physicians & Nurses

Anesthesia Guidelines for Postoperative Monitoring
Coenzyme Q10 PWSA Clinical Advisory Board Info
Dental Problems in Children and Adults 
Eye Care Issues
Genetics – Explanation for the Rest of Us
Genetics – Giving the Diagnosis to the Young Family 
Genetics – Giving the Diagnosis to the Established Family
Growth Hormone and PWS Booklet
Medical Alert Booklet
Orthopedic Issues 
Physician’s Note Symptom & Treatment Checklist
Psychiatry Primer for PWS
Scoliosis Guidelines 
Undescended Testes in Boys 

Information for Residential, Vocational, and Day Program Providers

PWCF is an approved vendor for the Department of Social Services Community Care Licensing Division, Vendor Number 2000699-735-2. PWCF is authorized to provide Continuing Education Units (CEUs) for Adult Residential Facility providers. For a list of CEU-approved courses or other professional development opportunities, email PWCF or call us at 800-400-9994.

PWS Overview Training Video for Professionals
CCL Adult & Senior Care Offices
Employment – Why Hire Someone with PWS
Food Security at Work brochure
Overview and Description of HCBS Tools Created for Professional Providers
HCBS Waiver Locking Waiver Template Letter
Access to All HCBS Tools: Go to the Parents page, open Adult Years tab, scroll down to HCBS Rules & Regulations Impact the Health & Safety of Adults with PWS
Medical Alert Booklet

Information Especially for Therapists

Core Therapies for the Child with Prader-Willi Syndrome brochure
PT and Sensory Recommendations
Speech & Language Therapy for the Child with Prader-Willi Syndrome brochure 
Therapeutic Interventions for the Child with Prader-Willi Syndrome booklet by Janice Agarwal, PT, CNDT, available for purchase at PWSA | USA