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Prader-Willi California Foundation
  • New Diagnosis
  • Parents & Guardians​
  • Professional Providers
  • Educators
  • Legal Professionals​
  • Resources
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  • Events
  • Membership
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Future Planning

Resources to help you plan for the future.

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Plan for the Future Starting Today

The unknown can feel overwhelming. However, planning for your loved one’s future can reduce that anxiety and bring greater peace of mind. The documents in this section will help families better understand the importance of creating a Special Needs Trust as soon as possible, and outline the essential steps to take just prior to and when your loved one turns 18.

This section also provides specialized resources to help legal professionals understand and navigate the unique and complex needs of the adult with PWS, ensuring comprehensive support for their future planning.

Documents included in this section address:

· Conservatorship

· Special Needs Trusts and Wills

· Supplemental Security Income (SSI)

 

Future Planning Resources

Conservatorship FAQs
Conservatorship Guidelines Article 2009
Facts About PWS for Conservatorship Attorneys
Guidelines for Regional Center Delegated as a Conservator
Handbook for Conservators
Importance of Conservatorship from Parent's Perspective
Special Needs Trust - Letter of Intent (Blank)
Special Needs Trusts & Wills PowerPoint Handout
SSI - Guide for Representative Payee 2026
SSI - Guide to Doctor's Exam Needed for Disability Claim
SSI - How to Appeal a Denial Booklet from SSA
SSI - How to Apply for SSI for Persons with PWS
SSI - Overview of SSI Benefits Program
Synopsis of PWS
Wills, Trusts, and Estate Planning - L Thornton

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PWCF serves family and professional members throughout California, offering programs and services across our five service areas: education, support, advocacy, awareness, and research.

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