Share and Support Groups – Live on Zoom!
Share advice and tell your story with other parents at the quarterly Share and Information Exchange groups happening Wednesday, July 26. These groups are a viable resource to expand your network and create meaningful connections with other parents affected by Prader-Willi Syndrome. You are never alone in your PWS journey. Use the links below to register […]
PWS Residential Staff Training Focus Session #2
ZoomFocus Session #2: Strategies to Reduce Oppositionalism and Arguing. The course will provide an overview of the ubiquitous nature of anxiety in PWS and provide specific strategies that help reduce this anxiety and therefore reduce maladaptive, unwanted behaviors. Specifically, this course will focus on strategies to respond to PWS’ low tolerance to frustration and disappointment, oppositional thinking, […]
Residential Staff Overview Training: August 2023
ZoomLooking to improve your understanding of your PWS resident/client? This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course will provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview […]
PWS Residential Staff Training Focus Session #3
ZoomFocus Session #3: Strategies to Improve Cooperation. This course will provide an overview of the ubiquitous nature of anxiety in PWS and provide specific strategies that help reduce this anxiety and therefore reduce maladaptive, unwanted behaviors. Specifically, this course will clarify that punishment and consequences are not effective with residents with PWS and in fact can increase […]
Behavior Management Family Session #5
ZoomRegister Today Join us as we share PWS-specific behavior management interventions that reduce arguing and power struggles and improve cooperation. Hosted by Lisa Graziano, M.A., LMFT, each live Zoom training in this 6-part series features learning-enhanced role play fun and allows plenty of time for your specific questions. Registration includes the handouts and video of all
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Residential Staff Overview Training: September 2023
ZoomLooking to improve your understanding of your PWS resident/client? This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course will provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview […]
Behavior Management Family Session #6
ZoomRegister Today Join us as we share PWS-specific behavior management interventions that reduce arguing and power struggles and improve cooperation. Hosted by Lisa Graziano, M.A., LMFT, each live Zoom training in this 6-part series features learning-enhanced role play fun and allows plenty of time for your specific questions. Registration includes the handouts and video of all […]
In-Person Share and Support Groups (September 2023)
Beach Cities Health District 514 N Prospect Ave UNIT 102, Redondo Beach,, CASeeking advice from other parents? Do you wish you could expand your network within the PWS community? These share and support groups are open to PWCF members who wish to connect with other parents to share advice, exchange contact information and learn from one another's experiences. The groups will be divided by age. RSVP Here Address: Beach Cities Health District 514 […]
PWS Residential Staff Training Focus Session #4
ZoomFocus Session #4: Manage Obsessive-Compulsive Behaviors and When to Use Medication. This course will outline strategies to manage PWS’s obsessive-compulsive symptoms including skin picking, collecting, excessive talking, and excessive questions. We will describe how to respond to PWS’s unique symptom to confabulate, and false allegations of abuse. Finally, we will explore PWS’s psychiatric symptom profile, medication management, […]
Residential Staff Overview Training: October 2023
ZoomLooking to improve your understanding of your PWS resident/client? This two-hour live webinar is designed to meet the requirement toward the recertification of Adult Residential Facility Providers. The course will provide an overview of PWS’s physiological and neurocognitive symptoms, describe how to create the environmental basics that all individuals with PWS need, and provide an overview […]
Team PWCF – 2023 Aquarium of the Pacific 5K and Long Beach Marathon
We’re proud to be an official charity with the 2022 Long Beach Marathon / Aquarium of the Pacific Join TeamPWCF to help us raise awareness and funds at this popular race Experience the thrill of a lifetime as you cross the finish line knowing you’re supporting families affected by Prader-Willi syndrome Run, Jog, or Walk with […]
2023 PWCF General Education Meeting
The 2023 PWCF General Education Meeting returns to Northern California for the first time in 5 years. Join us at the DoubleTree Hotel in Sacramento, CA on Saturday, November 4 for a day of insightful presentations, interactive panels and much more. Date: November 4, 2023 Time: 8 AM - 5 PM. 8:00 am - Registration & […]