Join us Saturday, November 6th at 9:00 AM live on Zoom.

Reserve your ticket here.

Access to the conference is available at no cost for current PWCF members.

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Those who are current on dues may take advantage of our Early Bird 2022 membership renewal by clicking here.

Conference Details: 

The featured speakers this year are:

– Dr Andrea Haqq, Pediatric Endocrinologist at the University of Alberta Edmonton.

Dr. Andrea Haqq is a Pediatric Endocrinologist at the Stollery Children’s Hospital and a Professor of Pediatrics at the University of Alberta, Canada. As a clinician-scientist with an established international collaborative research program, she explores the genetic and metabolic foundations of pediatric obesity. Dr. Haqq is an internationally recognized expert in the study of Prader-Willi Syndrome (PWS) and childhood obesity. She has become known and sought after as a specialized pediatric endocrinologist for such children. Currently, she is the Director of The Muttart Diabetes Research and Training Centre (2020).   She leads the Canadian data coordinating centre for children with severe obesity in The TEMPO (Tracing the Effect of the MC4 Pathway in Obesity) Registry (Rhythm Pharmaceuticals). Her expertise spans the interface of basic, clinical and translational research and her novel studies have incorporated biochemistry, physiology, genetics, human microbiota, and clinical trials.

Dr Haqq will share new information on Microbiotics and Fiber and the effect on the digestive tract in people with PWS

Marcela Estrada

– Dr. Marcela Estrada, Pediatric Opthamologist at the UC Davis Medical Center

Marcela Estrada, MD  is an Assistant Professor in Pediatric Ophthalmology and Adult Strabismus at UC Davis. She is originally from Lodi, CA and is happy to serve her Northern California community. She completed her undergraduate education at Stanford University; medical school at University of Iowa Carver College of Medicine, where she was inducted into the Alpha Omega Alpha Honor Medical Society; ophthalmology residency at University of Washington; and fellowship training at the Children’s Hospital of Philadelphia and University of Pennsylvania.   She conducts research in retinopathy of prematurity and reducing ocular health disparities in underserved pediatric communities. She is also passionate about improving vision screening techniques in children with autism spectrum disorder, developmental disability, and neurodiversity, motivated by her adorable 6-year-old nephew, Xander, with Prader-Willi Syndrome and high refractive error.

Dr Estrada will cover the topic of vision issues in people with PWS

Updates on promising research studies will also be discussed.

Can’t tune in live?

A recording of the conference will be available for viewing a few days after the conference date.

We look forward to spending a Saturday morning together to learn about current issues and  potential therapies to improve the lives of those with PWS.

Tentative Conference Schedule (Subject to change)

Saturday, November 6, 2021

Time

 9:00 – 9:15        Welcome and business meeting

 9:15 – 10:00      Dr. Marcela Estrada – Vision issues in people with  PWS

10:00 – 10:15     Questions and Answers

10:15 – 10:25      Harmony Bioscience – Presentation on Ptolisant

10:25 – 10:30      Brief opportunity for questions

10:30-10:40        Saniona – Presentation on Tesomet

10:40-10:45        Brief Opportunity for Questions

10:45-10:55        BREAK

11:00-11:45         Dr. Andrea Haqq – Macrobiotics and Fiber and the

                            effect on digestions in people with PWS

11:45-12:00         Questions and Answers