Prader-Willi California Foundation (PWCF)
Since 1979 Prader-Willi California Foundation has been dedicated to supporting people with Prader-Willi syndrome, their families, and the professionals who serve them. PWCF is funded by donations, grants, membership dues, and events. We invite you to join us.
A Full Life Without Limits
New Federal Rules Impact YOUR Future
PWCF Creates New Tools to Keep Your Loved One Safe
The intent of the Center for Medicare & Medicaid Services Home & Community-Based Services Rules and Regulations is to “deinstitutionalize” people with disabilities, integrate them into the community to the same degree as non-disabled individuals. While honorable in their intent, the new Rules present unintended dangerous, life-threatening consequences for persons with PWS.
PWCF created new tools to help keep your loved one safe. Families Click Here and Residential Providers Click Here to learn more and to access these new life saving tools.
New Behavioral Video
PWS is unlike any other developmental disability and arguably one of the most complex and misunderstood. Presented by Lisa Graziano, M.A., this four hour training course will give you the tools you need to reduce unwanted behavior common amongst persons with PWS. Topics include how to manage the medical aspects of PWS as they impact behavior, how to create a supportive PWS-environment, how most persons with PWS think, and tons of specific PWS-specific strategies and interventions to help you starting today!
California State University Fullerton would like to invite participants with PWS ages 18 to 35 years to participate in a study designed to understand which factors contribute to muscle force, balance and walking characteristics in PWS. The study will require one short visit (3-4 hours) to California State University Fullerton. Visit our research page for details on this and other opportunities.
Watch the video that Justin & Jamie Burns put together for the Burns Truck & Trailer Services Charity Golf Tournament