Supporting Residential Providers
The current Centers for Medicare/Medicaid’s Home and Community-Based Services Rules and Regulations include a provision that “individuals have freedom and support to control their schedules and activities and have access to food any time.” As you know, this provision is life-threatening to persons diagnosed with PWS because all persons with PWS have some degree of the PWS hyperphagia symptom that drives their brain to find food and eat but does not feel full no matter how much food is eaten. When integrated into your residents' IPPs, the documents below can help you provide for the health, welfare, and safety of your residents with PWS.
HCBS Resources
- Agreement for Individual with PWS - Access to Money
- Agreement for Individual with PWS - Elopement
- Agreement for Individual with PWS - Food
- Agreement for Individual with PWS - Safety Search
- Agreement Re Food - Non-PWS Roommates
- Brief PWS Overview Training for CCL Video
- Cover Letter to Professionals
- HCBS Final Rule Fact Sheet
- HCBS PowerPoint Presentation
- HCBS Questions w CMS Answers Article
- PCP-IPP Cheat Sheet
- Physicians Note Symptom & Treatment Checklist
- Physicians Note Symptom & Treatment Checklist PWS-LIKE
- Request for Waiver Letter from ARF to Licensing Template
- Waiver Advocacy Letter - List of Local CCL Offices
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