Medical Resources for Families & Professionals
The resources in this section provide a snapshot of the management strategies for some of the more common PWS symptoms. For additional resources and personal support, please contact PWCF.
Medical Resources
- A Systemic Review of hGH in Adults with PWS
- Adenotonsillectomy for the Treatment of Obstructive Sleep Apnea in Children with PWS
- Adenotonsillectomy Low Success for Treating OSA in PWS
- Advisory Statement - Long Acting hGH Medication
- Age Does Not Affect Respiratory Characteristics in Children With PWS
- Anesthesia - Post-Op Monitoring of Pediatric Patients
- Benefits of hGH Through Adulthood
- Blood Drawing Tips and Tricks
- Caloric Needs in Children with PWS Treated with hGH
- Cardiovascular Autonomic Dysfunction and Sleep Abnormalities
- Cognitive and Adaptive Effects of Early Growth Hormone
- Core Therapies for the Child with PWS
- Cryptorchidism Incidence
- Cycloid Psychosis Abstract 2019
- Early Start hGH Associated with Positive Effects in PWS
- Effects of hGH on Scoliosis in Children
- European Outcomes of hGH Therapy in Obstructive Apnea
- Genetic Testing in CA for PWS
- GI - Algorithm 2022
- GI - Colorectal Function in Adults
- GI - Constipation Medical Alert
- GI - Delayed Stomach Emptying
- GI - FDA Warning Added to Ozempic
- GI - Gastroparesis & Bowel Article
- GI - High Prevalence of Lower Urinary Tract Dysfunction
- GI - NICU G tube vs NG tube PWSA Consensus Statement
- GI - Overview of GI Issues
- GI - Probiotics Effects in PWS
- GI - Probiotics May Boost Beneficial Gut Bacteria in PWS
- GI - Swallowing Function Study
- GI - Trend Report on GI Issues PWSA 2025
- GI - Understanding Gastric Motility and Gastroparesis
- Growth Hormone Booklet
- hGH and Scoliosis
- How to Give the PWS Dx to Family of Infant
- How to Give the PWS Dx to Family of Older Child
- Hyperphagia - Consequences in PWS
- Information for Psychiatrists
- Medical Alert Booklet
- Medical Alert for Routine & ER Tx
- Medical Alert Inpatient
- Medical Fact Sheet - Infants
- Medical Fact Sheet - Teens and Adults
- Medical Fact Sheet - Toddlers
- Medication Combinations and Slow Metabolism Warning
- Necessity for Food Security
- Nutrition Infants and Toddlers Book
- Nutritional Phases in PWS
- Obesity - Hypoventilation & Right Heart Failure
- Oedema Fluid Retention
- Orthopedics - Bone Mineral Density and Gait in PWS
- Orthopedics - Contributing factors to Postural Stability in PWS
- Oedema - Hypoventilation
- Osteoporosis - Evaluation & Therapy 2008
- Osteoporosis Evaluation and Therapy in PWS
- Outcomes in PWS Child Treated with hGH
- Ozempic et al Warning
- Perinatal Diagnosis of PWS Advisory PWSA-PWCF
- Physical Therapy - PT & Sensory Recommendations
- Physicians Note Symptom & Treatment Checklist
- Picking and PWS
- Picking - NAC Treatment
- Picking - Overview and Treatments
- Protocols by Gourash and Forster
- Protocols for Skin Picking by IPWSO
- Primer for Psychiatrists
- PWS Testing
- Relationships Between Sleep Disturbance and Psychotic Experiences
- Scoliosis - Primer on Scoliosis Surgery for PWS
- Scoliosis - PWSA Survey 2010
- Scoliosis - What's That Orthopaedist Talking About Webinar
- Sensory Integration - Physical & SI & Recommendations
- Sex - Hypogonadism and Management in Adolescents PWS
- Sleep - Breathing Abnormalities in Sleep
- Sleep - Sleep Problems in PWS JForster
- Speech - Speech and Language Therapy
- Study Finds hGH Has No Negative Effects on Sleep
- The PWS Personality Greyscale
- Time for a General Approval of hGH
- Undescended Testicles
- Water Intoxication Alert PWSA
- Vykat XR - DCCR in PWS Update
- Vykat XR - Consumer Handbook
- Vykat XR - Fact Sheet
- Vykat XR - PANTHERx Specialty Pharmacy
- Vykat XR - Patient Assistance Program - Soleno One
- Vykat XR - Physician Start Form
- Vykat XR - Prescribing Info
- Vykat XR - Resources Page
- Vykat XR - Safety Info
Join PWCF for more support
PWCF serves family and professional members throughout California, offering programs and services across our five service areas: education, support, advocacy, awareness, and research.