Walk for PWS Livestream Event

Watch Livestream Event HERE! Join us for the 2021 Virtual Walk for PWS livestream taking place on Saturday, July 31! We will be joined by special guests, live performers, and families to celebrate the conclusion of the annual Walk for PWS. Here are 3 different ways to participate in the Virtual Walk: - Donate or create […]

Fun and Fitness with Brad Clark – Thursdays, August 26 – November 11

Join Brad Clark of BC Adaptive Fitness and PWCF for “Fun & Fitness” from 4 – 4:45 PM PST on Thursdays! No charge for current PWCF members. Ages 14 and older are welcome. The next 12 week session begins on August 26 and ends on November 11.   Participants can track their progress by earning virtual […]

Weekly Chat Group for People with PWS – Fridays at 4:30 PM

Join us on Fridays for an afternoon full of fun activities at our Weekly PWS Chat Group! This group is open to PWCF members ages 10+ and is held live on Zoom from 4:30 - 5:30 PM. Each week brings a different activity for everyone to enjoy and sometimes we are joined by special guests! Please […]

Music and Movement with IEPSCV August 2021 – Aloha Summer

The Include Everyone Project of Santa Clarita Valley (IEPSCV) is providing monthly music and movement sessions for PWCF members. If you wish to receive emails containing links to this or any of our other activities, please opt into our Weekly Activities Mailing list. Participants are required to sign a waiver before participating in any PWCF activity. […]

Diving Deep Into Managing PWS Behaviors – Session 5: Why Can’t He Admit a Mistake?

Join us for a brand new behavior management training series presented by Lisa Graziano, M.A., LMFT. This 7 part series will explore the different aspects of PWS behaviors and introduce various techniques you can implement to manage these behaviors. If you are unable to tune in live, no worries. Registration includes a downloadable recording of each […]

Northern California Support Group – Live on Zoom!

Support for Families of Children with Disabilities is hosting the PWCF quarterly share and support groups for the Northern California area. These groups are a great opportunity to share advice and experiences with other local families.   Please email info@pwcf.org for the link to join this meeting. Details below.

Music and Movement with IEPSCV September 2021

The Include Everyone Project of Santa Clarita Valley (IEPSCV) is providing monthly music and movement sessions for PWCF members. If you wish to receive emails containing links to this or any of our other activities, please opt into our Weekly Activities Mailing list. Participants are required to sign a waiver before participating in any PWCF activity. The […]

2021 Virtual Mini Conference

Join us Saturday, November 6th at 9:00 AM live on Zoom. Reserve your ticket here. Access to the conference is available at no cost for current PWCF members. Not current on dues? Renew your 2021 membership here. Those who are current on dues may take advantage of our Early Bird 2022 membership renewal by clicking here. […]

Shining Star 2021

Shining Star is the yearly opportunity for the PWS community to reflect back love and support! Contribute to the star map below and dedicate a star to your loved one by clicking here. Every donation counts as one star and will be numbered accordingly. Donors receive a receipt and a numbered star certificate. Check back through […]

PWS Specific Holiday Nutrition Training presented by Leah Blalock

Join us for a special holiday themed nutrition training: How to Make Fun and Nutritious Recipes for the Holidays and the New Year on Saturday, December 18 at 10:00 AM PST  presented by Leah Blalock, MS, RD, CSP, CDE.  Register for Session 3 here.   This is the final training in the PWS Nutrition Training Series […]

February 28 is Rare Disease Day!

Help us raise awareness for Prader-Willi syndrome by getting involved with one, or all, of these ways: Buy an Awareness Shirt In honor of this year’s theme “Show Your Colors”, we’ve created a shirt that you can wear not only on Rare Disease Day, but all year long. In keeping with the theme, this fun colorful […]