Board President Roger Goatcher had the honor of presenting the following awards at the PWCF business meeting during the 2017 annual conference. Whitney Bras - Please accept this certificate as a token of appreciation for your dedication and commitment to the PWCF Board of Directors from 2012 - 2017 The Burns Family - Please accept
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Close to 100 parents, providers, and extended family gathered at the LAX Crowne Plaza on Saturday October 14th for our annual State conference. This year’s theme was: Help – Here and Now, emphasizing Prader-Willi California Foundation’s mission to provide parents and providers with the tools and support to manage the day-to-day needs of their loved one
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Part of TeamPWCF 2017 2017 Long Beach Marathon Event October 6 – 8, 2017 It was a beautiful race weekend, and a weekend filled with raising awareness. Representing 15 loved ones who have Prader-Willi syndrome, TeamPWCF had almost 60 people participate in races over last weekend, included 4 who have Prader-Willi syndrome. TeamPWCF also
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Most of TeamPWCF 2016 Race weekend is almost here and we're excited that this year our team has grown! We have 52 members of TeamPWCF 2017, including 4 people with Prader-Willi syndrome, participating in the jetBlue Long Beach Marathon races this coming weekend. TeamPWCF will be raising awareness for Prader-Willi syndrome and Prader-Willi California Foundation
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PWCF has a long history of helping out group homes in a variety of ways. Earlier this year, Board Member Daniela Rubin, Ph.D. came up with the idea of a program to provide exercise equipment to group homes. As a professor of Kinesiology at CSUF, Dr. Rubin knew that when universities update exercise equipment they have
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Ralphs shoppers - It's time to re-enroll in the community contribution program. Please log-in to your account and re-select Prader-Willi California Foundation (Organization #93694 ) as your designated charity. Then every time you use your Ralphs reward card we will earn money. If you aren't enrolled in the program, please sign up. Every September 1st
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Sign up today for our annual conference taking place on Saturday, October 14th. This year's conference: Help, Here and Now featuring Dr. Merlin Butler and Barb Dorn, will update you on the latest in PWS-related research and provide you with strategies to use now. Come early for our meet and greet on Friday evening. People with Prader-Willi
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Earlier this month 49 campers ranging from 11 to 63 years old enjoyed 5 nights of fun-filled camp activities at Prader-Willi California Foundation’s special PWS session at Camp Harmon. The camp is set in a beautiful area with huge Redwood trees, a pretty stream to wade in and look for fish or tadpoles, and other trees
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National Prader-Willi Syndrome Awareness Month may be over, but at PWCF we work hard to raise awareness throughout the year. We know that less than half people with Prader-Willi syndrome in the United States are properly diagnosed and getting appropriate support. We know that being surrounded by a community that understands PWS helps the whole family.
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PWCF announces that they have been accepted, for the second year in a row, as an Official Charity in the 2017 JetBlue Long Beach Marathon Run, Jog, or Walk with us in the Aquarium of the Pacific 5K Run/Walk or if you need a bigger challenge sign up for the marathon or half marathon. 5K
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