2019 Annual State Conference
November 2 @ 8:00 AM - 5:00 PM
Sign up today for our annual conference taking place on Saturday, November 2nd.
People with PWS are truly unique. For this year’s conference, we decided to embrace that uniqueness and dance to our own beat!
Parents, siblings, family, friends, and professionals will have a chance to laugh together and gain meaningful connections that are sure to last a lifetime. Come and hear leading experts discuss the most current symptom management strategies and those on the horizon. You are sure to learn something new and have fun doing it at this conference!
Meet and Greet Family Mixer: Arrive Friday November 1st and meet with other conference attendees. PWCF’s Board of Directors and even some speakers! Located in the hotel restaurant starting at 7 pm. Children welcome accompanied by adult.
Gastroenterological problems are common in PWS throughout the lifetime and can be difficult to manage. This presentation will discuss what the latest research reveals and the best ways to prevent and treat GI problems.
Lynne Bird, M.D. The PWS Research Landscape
The world of PWS research is currently exploding with excitement and hope. This presentation will provide an overview of current research including medications targeting some of the most life limiting symptoms such as the PWS hyperphagia food drive.
It’s a changing world. This presentation will give you the tools you need to navigate it so your child or adult is safe and healthy.
Breakout sessions will include topics on, Nutrition and Supplements, Importance of Self-Care, a PWS Sibling Support Panel, and our always popular Share Sessions by Age Group.
Contact PWCF by September 15 for a Spanish interpreter.
Ponte en contacto PWCF antes del 15 de Septiembre por un intérprete Español.