May is Prader-Willi Syndrome Awareness Month!

When you raise awareness of PWS you are helping create a better life for everyone touched by PWS. The more people who know about PWS, the more understanding and compassion we are creating in the world. PWCF is here to help you spread awareness this month, and you can read more about the history of PWS Awareness month below. 

Ways you can help spread awareness: 

  • Tell your story! Your personal story is the most powerful way to get peoples’ attention.
  • Take advantage of social media. 
    • Use the #PWCFCares and post a story about your loved one with PWS doing something awesome. We will re-post your stories on our page to help inspire our community.
    • We will be posting every day in the month of May so share our posts on social media.
    • Use our Facebook photo frame.
    • Create a Facebook fundraiser for PWCF just like you do for your birthday. Every time you share this, you are spreading awareness of PWS!
  • Wear your past Walk shirts.
  • Post your Walk Awareness Yard Sign.
  • Show your support for PWCF by setting up a recurring donation or making a donation on May 5, Giving Tuesday Now

Thanks to the work of PWCF members, May is also recognized by the state of California! On May 13, 2019 the California State Senate unanimously approved a bill declaring May as PWS Awareness Month. PWCF proudly sponsored this resolution, along with a letter of support from PWSA (USA). Six PWCF members met with Senator Scott Wilk to represent us on the senate floor.

National PWS Awareness month started when Republican Congressman Ed Royce and Democratic Congresswoman Jane Harman co-sponsored the original House Resolution in 2009 thanks to efforts by Amy Porter whose niece Abby has PWS. PWCF members Tom and Renay Compere (parents to William Compere – PWS) brought this important cause to their attention. The bill was passed on May 27, 2010 thereby establishing National Prader-Willi Syndrome Awareness Month!

You can see the video of Royce and Harman speaking to the House:

Read the Text of final Senate Resolution 543

Follow us on Facebook for daily facts about PWS throughout the month of May.