It is absolutely critical that residential, vocational and day program service providers understand how Prader-Willi syndrome impacts the brain and physiology of the affected individual.
With this understanding, providers will be better able to manage the complex medical needs and implement effective behavior management strategies that will improve the quality of life of the individual with PWS, his peers, and staff.
There are many tools available to help providers: articles, brochures, books, and DVDs. In addition, the Prader-Willi California Foundation can provide virtual or on-site training upon request. The proficient provider has viewed and is familiar with each of the resources below.
Medical Alert Booklet
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PWCF has a host of parents to support and help guide you, in-person share and support groups, and links to online support groups. Click Here for Individual Support and Support Group information . You never need to feel alone.