This section will focus on the needs of the young child. There are so many changes that take place during the first several years of a child’s life and that doesn’t change just because your child has Prader-Willi syndrome. While easier said than done, it is important to try not to compare your child to the standard measures of what a child “should” be doing at any given stage of development. Children with PWS are typically delayed achieving their milestones, but with therapy these skills will come in time. Parents of a child with PWS learn to celebrate each milestone, big or small, and gain a true appreciation of the hard work that goes into mastering each new skill. Explore the links above for more information on the topics that are relevant to these young years.
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PWCF has a host of parents to support and help guide you, in-person share and support groups, and links to online support groups. Click Here for Individual Support and Support Group information. You never need to feel alone.