Individuals with Prader-Willi syndrome often want to work. Working at an appropriate job provides a sense of self-worth and gives the individual a good way to occupy their time. As with anything, the key is to find the appropriate workplace, one that ultlizes the individuals strengths, does not contribute to anxiety which can lead to behavior problems and is, of course, food secure. One of the roles of the Regional Center is to provide assistance in finding an appropriate workplace, however due to the unique needs of people who have PWS this often proves a difficult challenge. Parents are the best advocates for their children throughout their life and with a willing employer, appropriate education and training, and a positive relationship you may be able to secure a positive work experience for your adult child.
PWCF maintains online and in-person Support Groups for parents and professionals.
PWSA (USA) maintains several Facebook support groups.