Individuals with Prader-Willi syndrome often want to work. Working at an appropriate job provides a sense of self-worth and gives the individual a good way to occupy their time. As with anything, the key is to find the appropriate workplace, one that provides supervision, does not contribute to anxiety which can lead to behavior problems and is, of course, food secure. One of the roles of the Regional Center is to provide assistance in finding an appropriate day program or workplace, however due to the unique needs of people who have PWS this often proves a difficult challenge. Parents are the best advocates for their child throughout their life and with a willing employer, appropriate education and training, appropriate supervision at all times, and a positive relationship you may be able to secure a safe and positive work experience for your adult child. Unfortunately, however, the symptoms of PWS prohibit sustained, gainful employment.
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PWCF has a host of parents to support and help guide you, in-person share and support groups, and links to online support groups. Click Here for Individual Support and Support Group information. You never need to feel alone.