Food security is a life long need for individuals with Prader-Willi syndrome. Adults must continue to have their food intake monitored and controlled by their parents or caretakers. We encourage the continued strategies as outlined in our food management section for young children, as the same methods apply throughout life: a regular food schedule, controlled portions, restricted food access, and a healthy diet.
As noted in our section for young parents Prader-Willi California Foundation also highly recommends the concept of Food Security developed by PWS experts Drs. Janice Forster and Linda Gourash. An overview of their “Food Security” concept is here: Food Security Basic Concepts. This strategy is successful for all ages.
Families and providers need to work together to ensure that the concepts of “Food Security” be consistently enforced. If your adult child lives in a group home or supported living situation the caretakers there should be educated on the concept as should vocational and day program providers. Parents should be diligent about maintaining appropriate diet plans when their adult children who live outside the home are home for family visits. This is often a time of weight gain since families tend to forget the diligence needed once the individual with Prader-Willi syndrome is not living with them full time, so special attention is needed during home visits.
PWCF maintains online and in-person Support Groups for parents and professionals.
PWSA (USA) maintains several Facebook support groups.