This parent section is divided into age groups so start with whichever link above fits your child’s age.
There is a great deal of information available to parents and care providers of persons diagnosed with Prader-Willi syndrome. Families and professionals are encouraged to learn as much as you can about medical and therapeutic treatments and how to manage the symptoms associated with PWS.
As you gather information from this and other PWS sources, you are encouraged to connect with other parents, care providers, and professionals who have walked where you’re now walking and can share their wisdom and insights.
You are not alone.
Make Connections | Get Support
PWCF has a host of parents to support and help guide you, in-person share and support groups, and links to online support groups. Click Here for Individual Support and Support Group information. You never need to feel alone.
Physician’s Note Symptom & Treatment Checklist to help you document the need for supports and services