Update on PWS & COVID-19

2022-08-30T15:36:38-08:00March 20th, 2020|

Updated March 16, 2021 PWCF is here to support your family’s heath and wellbeing during this challenging time. Because of the unique medical needs of persons with Prader-Willi Syndrome, we understand you may have specific questions about how to keep your loved ones and families safe. We are here to support you every step of the

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CHANGE IS POSSIBLE: PWS Behavior Management 2020 Training Series

2022-08-30T15:36:44-08:00January 29th, 2020|

Yes, behavioral change IS possible! ¡Sí, es posible un cambio del comportamiento! Parents, Extended Family, Babysitters, and Professionals will learn specific strategies to reduce or even eliminate some of the most challenging PWS behaviors including: Arguing and Verbal Aggression Oppositional and Defiant Behavior Temper Tantrums and Physical Aggression Food-Related Behaviors Repeated Questions and Perseveration Skin Picking

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Be a Shining Star in 2019

2022-08-30T15:36:52-08:00November 26th, 2019|

PWCF Wishes Our Members, Professionals, and Supporters a Wonderful Holiday Season and a Happy New Year! Be a light to someone you love or support, or make a donation in their memory so that we can continue to create a Full Life Without Limits! Donate Today! PWCF's annual Shining Star campaign helps fund the important work we

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PWCF Creates New Conservatorship Tools

2022-08-30T15:36:59-08:00November 7th, 2019|

What is Conservatorship? Why do we need it? When do we need it? How do we get it?  These are just a few of the questions answered in PWCF's new tool, Conservatorship FAQs.  New Federal Rules and Regulations make it more important than ever to secure conservatorship for your adult with PWS so that you have

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Two New PWS Behavior Management Training Conferences!

2022-08-30T15:37:04-08:00June 30th, 2019|

PWCF adds more dates and locations for the training seminar, PWS Behavior Management: Proven Strategies from Childhood thru Adulthood  September 8 in San Diego    |    September 15 in Millbrae/San Francisco PWS Behavior Management Conference The behavioral symptoms related to PWS require specific interventions and strategies. This seminar will teach you those strategies.

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Be a Shining Star in 2018

2022-08-30T15:37:31-08:00December 14th, 2018|

PWCF Wishes our Members, Professionals, and Supporters A Wonderful Holiday Season and a Happy New Year! Be a Shining Star this year to brighten the way to fulfill our mission; Support the 2018 Shining Star Campaign. Your tax-deductible gift means we can continue to provide: Parent Education Programs Professional Training Programs PWCF’s Camp Multidisciplinary PWS Clinics

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New Tools to Ensure Your Adult’s Safety!

2022-08-30T15:34:30-08:00December 11th, 2018|

New rules and regulations significantly affect adults with disabilities who receive Federal funding for residential services (group homes and supported living services), day programs, and vocational work sites. Arguably the most significant provision is that “individuals have freedom and support to control their schedules and activities and have access to food any time.” For persons with PWS this provision can

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New Tool To Help You Get School Services!

2022-08-30T15:34:35-08:00December 11th, 2018|

PWCF developed a new tool to help you get the supports and services your child needs to be safe and successful at school. Your IEP Team typically needs justification and documentation before it will provide the supports you're requesting, so PWCF developed a new Physician's Note Symptom & Treatment Checklist.  Completed by you and your child's physician, this

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2018 Conference Registration is Open!

2022-08-30T15:34:40-08:00August 21st, 2018|

Sign up today for our Annual State Conference taking place on Saturday, October 27th, 2018 in Sacramento.  This year's conference: Your California Community brings focus to the importance of connecting with your local PWS community. Working together we can create more understanding, more support, more hope, and better outcomes for every person in the life of someone

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