PWSA-USA Online Support

In addition to the PWCF Support Groups, PWSA-USA maintains the following closed Facebook Support groups for parents (based on the age of the child):

Birth – 3 Years

To join this group and be a part of the Parent Mentoring Program please go to www.pwsausa.org, click on New Diagnosis and fill in the form, or call 800-926-4797

PWSA (USA) Birth to Three is an invitation-only sharing and support group for parents of infants and toddlers from birth to three years old , who are part of the PWSA (USA) Parent Mentoring Program- We provide a safe, secure place for learning, sharing and connecting with other parents and parent mentors- a place for asking questions, sharing experiences, and fostering friendships with parents of children the same age as yours… all in a hopeful, supportive environment sponsored and moderated by PWSA USA staff.

3 years – 5 years

PWSA(USA) Three to Five is a sharing and support group for parents of children ages three through five years old, who are part of the PWSA (USA) Parent Mentoring Program, and/or were members of the PWSA 0-5 Yahoo group. PWSA(USA) Three to Five provides a safe, secure place for learning, sharing and connecting with other parents and parent mentors in real-time – a place for asking questions, sharing experiences, and fostering friendships with parents of children the same age as yours… all in a hopeful, supportive environment sponsored and moderated by PWSA USA staff. (To be a part of the Parent Mentor Program please go towww.pwsausa.org, click on New Diagnosis and fill in the form, or call 800-926-4797)

6 years – 12 years

PWSA(USA) Six to Twelve is a sharing and support group for parents of children ages six through twelve years old, who are (or would like to become) PWSA(USA) members and/or were members of the PWSA age specific Yahoo groups. PWSA(USA) Six to Twelve provides a safe, secure place for learning, sharing and connecting with other parents and parent mentors in real-time – a place for asking and answering questions, sharing experiences, and fostering friendships with parents of children the same age as yours… all in a hopeful, supportive environment sponsored and moderated by experienced PWSA USA staff. If you would like to become a member of PWSA (USA), please visit www.pwsausa.org/membership.. If membership is a hardship at this time, please message Lori Moline(me), or Diane Seely–or email parentmentors@pwsausa.org. Scholarships are available on a limited basis.

Teens and Up

PWSA (USA) Teens and Up is a sharing and support group for parents of teens and adults with Prader Willi syndrome, who are (or would like to become) PWSA (USA) members and/or were members of the PWSA age specific Yahoo groups. PWSA(USA) Teens and Up provides a safe, secure place for learning, sharing and connecting with other parents and parent mentors in real-time – a place for asking and answering questions, sharing experiences, and fostering friendships with parents of young people the same age as your child… all in a hopeful, supportive environment sponsored and moderated by experienced PWSA USA staff. If you would like to become a member of PWSA (USA), please visit www.pwsausa.org/membership.. If membership is a hardship at this time, please message Lori Moline or Diane Seely–or email parentmentors@pwsausa.org . Scholarships are available on a limited basis.

There is also a special page for grandparents:

PWSA (USA) Grandparents

PWSA(USA) Grandparents is a sharing and support group for Grandparents of children (of any age) with Prader-Willi Syndrome. This group provides a safe, secure place to express your feelings, ask questions and make connections with other Grandparents in similar circumstances. PWSA(USA) Grandparents is staffed and moderated by PWSA(USA) support personnel, and other Grandparents like yourself, so you can rest assured that your questions will be answered quickly, and the information shared will be as accurate and up-to-date as possible. We encourage you to click the JOIN button and wait for one our administrative staff to send you a Facebook message, confirming that you have a grandchild with PWS. We look forward to getting to know you, and helping you be an informed, encouraged, and empowered part of your grandchild’s life! 

 

 

To join one of the PWSA groups click on the name to be taken to that group; then click “join” to submit your request to a group administrator.

Note that the 0-3 group is by invitation only for families participating in the parent mentor program

 

These groups are the only official Facebook groups of PWSA