PWCF Support Groups

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Prader-Willi Syndrome Information & Support Resources in California

Last updated – January 2016

Northern California

San Francisco Bay Area

For Parents of the Younger Child

Patti McRae
408-920-8003
pattimcrae@sbcglobal.net

San Francisco Bay Area

For Parents of Teens & Adults

Michelle Donaldson
415-290-6282
md@michelledonaldson.com

Sacramento

Diane Kavrell
530-753-5926
diane.kavrell@gmail.com

Central California

For Parents of Teens & Adults

Paula Watney
559-299-8171
paulawatney@pwcf.org

Southern California

Los Angeles County

Lisa Graziano
310-372-5053
lisag@pwcf.org

Julie Casey
818-843-7321
julie.casey@att.net

Orange County

Jenn Paige Casteel
949-735-0472
marchroses@hotmail.com

San Bernardino County

Ester Del Real
909-213-5992
esterdelreal@ymail.com

Spanish Speaking

Adults with PWS

Mercedes Gutierrez
619-822-5742
mercedes_rivera2002@yahoo.com

Infants & Children with PWS

Kilma Carrillo
760-427-1100
kilmab@excite.com

Infants & Children with PWS

Veronica Garcia
760-357-8189
vbaez92@yahoo.com

Online Support

PWCF Online Information Sharing Group for Members. This online information sharing group is for PWCF members. To join the group, log to www.yahoogroups.com . In the search box under the heading “Join a Group” enter PWCFmembers. When the PWCFmembers group name appears, click and follow instructions to join.

PWCF Online Information Sharing Group for Professionals. This online information sharing group is for professionals working with individuals with Prader-Willi syndrome e.g., Regional Center caseworkers, residential staff persons, etc. To join the group, log to www.yahoogroups.com . In the search box under the heading “Join a Group” enter PWSProfessionalsExchange. When the PWSProfessionalsExchange group name appears, click and follow instructions to join.

Information in other languages, International Prader-Willi Syndrome Organization (IPWSO): www.ipwso.org