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Rare Disease Day 2017

February 28

Rare Disease Day is a day of awareness to spotlight rare diseases around the world. The goal is to raise awareness with the general public as well as with policymakers.  Join us by doing one or more of the following things: Change your social media profile picture/s to a Rare Disease Day image Post pictures and facts about Prader-Willi syndrome ...

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5:00 PM

Children’s Hospital Los Angeles PWS Behavior Management Support Session

February 28 @ 5:00 PM - 6:00 PM
Children’s Hospital Los Angeles, 4650 Sunset Boulevard,
Los Angeles, CA 90027 United States

Children’s Hospital Los Angeles is generously inviting PWCF families to their PWS Support Session. Learn specific behavioral intervention strategies proven effective with kids with PWS, presented by PWCF’s Lisa Graziano, M.A. and Emily Dame, M.Ed. Learn how to: Reduce arguing and outbursts Reduce oppositionalism Reduce anxiety Create food security Improve the overall quality of life for everyone touched by PWS! ...

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