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Rare Disease Day 2017

February 28

Rare Disease Day is a day of awareness to spotlight rare diseases around the world. The goal is to raise awareness with the general public as well as with policymakers.  Join us by doing one or more of the following things:

  • Change your social media profile picture/s to a Rare Disease Day image
  • Post pictures and facts about Prader-Willi syndrome on Rare Disease Day
  • Tag these official US Rare Disease Day accounts to spread awareness further
  • Use hashtag #RareDiseaseDay on your posts
  • Write or Call your State or US Senator or Representative
    • tell them your concerns about living with a rare disease
    • ask them to support legislation that funds research for Prader-Willi syndrome and other rare diseases
    • ask them to support legislation that provides support for Prader-Willi syndrome and other rare diseases
  • Make a donation to PWCF so that we can continue to help you manage the needs of your loved one with PWS

    Rare Disease Day at NIH event features advances in rare diseases research

     

Details

Date:
February 28
Event Category:
Website:
http://rarediseaseday.us/