National PWS Awareness Month
May 1 - May 31
May is National PWS Awareness which started when Republican Congressman Ed Royce and Democratic Congresswoman Jane Harman co-sponsored the original House Resolution thanks to efforts by Amy Porter (Aunt to Colorado’s young Abby Porter who has PWS; and the woman sitting behind Congressman Royce) and PWCF members Tom and Renay Compere (parents to California’s William Compere) who brought this important cause to their attention. The House Resolution passed in December 2009 which then led to the Senate bill being passed on May 27, 2010 thereby establishing National Prader-Willi Syndrome Awareness Month!
Here are the videos of Royce and Harman speaking to the House:
Text of final Senate Resolution 543
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