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2017 Annual Conference
October 14 @ 8:00 AM - 5:00 PM
Our annual conference is always a not-to-be-missed event.
Sign up today for our annual conference taking place on Saturday, October 14th. This year’s conference: Help, Here and Nowwill update you on the latest in PWS-related research and provide you with strategies to use now. Come early for our meet and greet on Friday evening.
People with Prader-Willi syndrome are living longer, healthier lives than ever before. Medical science and research give us the most cutting edge treatment and management strategies, but it can often take years before this valuable information is useable in our daily lives. This year’s conference aims to bring you the latest information presented so you can start making positive changes starting today! You’ll go home with new symptom management strategies, renewed energy and hope, and connections to last a lifetime. Don’t wait for valuable PWS information to come to you, come to the conference and get Help, Here and Now!
Merlin Butler, M.D., Ph.D., FFACMG, Chair of PWSA’s Scientific Advisory Board will cover the most recent news in PWS research around the world. He will explain the research process and what it takes to go from an idea to a people-safe drug on the market, and what can families do right now to benefit from research that is years in the making.
Barb Dorn, R.N, BSN will cover healthy aging across the lifespan for those with PWS, with emphasis on gastroparesis and hidden gut issues. Much of what we have learned about PWS in recent years is that those with PWS are living longer than ever before and are encountering medical problems that PWS-research has identified, but has not had time to research interventions for. Barb will speak about what care providers can do now, based on these findings, until we have more science-based answers to our questions.
Breakout sessions will include topics on nutrition, IEPs, behavioral management, navigating the Regional Center, and the transition to adulthood.
Contact PWCF by September 15 for a Spanish interpreter.
Ponte en contacto PWCF antes del 15 de Sep-tiembre por un intérprete Español.